DSResearch Presentation TALIB

Improving lives of Children
with Down Syndrome

Nasreen Talib, MD, MPH
Medical Director

Down Syndrome Program
Children Mercy Hospital and Clinics
Professor Pediatrics - UMKCSOM

Picture from Down Syndrome Guild of Greater Kansas City brochure 1

© The Children's Mercy Hospital 2017

Down Syndrome Program at
Children’s Mercy Hospital

• Clinic started by parents of a child with DS-
Established in 1989 – Larry and June Rouse

• Focus on providing clinical care and resources
for children with DS

• Clinic once or twice a month

2

Down Syndrome Program
Now Excellence Clinical Care

• DSC program in the State of Kansas and around MO –
clinic is in St Louis

• Each patient with DS syndrome seen in a
multidisciplinary setting

• Clinics held two days a week – Wednesdays at Adele
campus and Fridays at Children’s Mercy South

3

Down Syndrome Program –
Excellence in Education

• Fellows - Behavior and Developmental Specialist – 1 month learning to take care of
patients with DS

• Residents - Weekly hands-on learning session in DSC
• Medical Students - Weekly hands-on learning sessions in DSC. Overview of Down

Syndrome to more than 200 medical students by and adult, a parent and a
Physician.

4

Down Syndrome Program –
Excellence in Research

5

Down Syndrome Program –
Excellence in Research

6

Down Syndrome Program –
Excellence in Research

7

Down Syndrome Program –
Excellence in Research

• Down Syndrome Arthritis – under
recognized

• Delay in Diagnosis

• Current arthritis treatment options are
poorly tolerated in patients with DS

8

Down Syndrome Program –
Excellence in Research

• The clinical challenges we face in this population of children
have spurred our translation approach to studying Down
Syndrome Arthopathy at CMH with the ultimate goal of early
detection as well as safe and effective treatment options to
optimize outcomes in patient with DS

• Dr. Jordon Jones and Dr. Ryan Funk will present the strategies
to improve early detection and safe treatment options

9

Contact Information

For Appointments please call (816)-960-2856 or Toll Free: (844) 960-2989 10
For Medical related questions please contact Karen Horne, RN at 816-960-2864

Email: [email protected]
Clinic Locations

Children’s Mercy Adele Hall Campus
2401 Gillham Rd. Kansas City, MO 64108

Or
Children’s Mercy College Boulevard
5520 College Blvd. Overland Park, KS 66211

Visit our Website at childrensmercy.org/downsyndrome