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I have always been keenly aware that diabetics can
run into eye problems, so I try to take care of myself the
best I can, and I think I’ve done pretty good.
I had since become a patient of Dr. Doreen Fazio,
and in May, 2019, I mentioned to her that I was having
trouble focusing with my left eye, and after a few tests,
she suggested I see a retina specialist. An appointment
with Dr. Michael Javaheri confirmed what I really didn’t
want to hear: Age related Macular Degeneration (AMD)
and what his plan for treatment was. The retina was
swollen and leaking (making it “wet” AMD) and if I
didn’t have the treatment, I’d go blind.
The treatment involves injections to the eye that
will help the swelling go down so I scheduled an
appointment to have the treatment done. I was told the
treatment may have to be once a month…for the rest of
my life. This was a scary prospect but I really had no
choice.
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Seeing through a “macular degenerated” eye is like
looking in a fun-house mirror without the chance of
escaping. Straight lines are wavy, writing is slanted. I
would have failed A DMV eye test. Reading is out.
So far I’ve had 5 injections and slow as it may be,
the healing is happening. Will I ever STOP the shots?
Probably not, but instead of once a month, perhaps once
every two. The last doctor’s appointment cleared me for
2 months follow up so there is hope. That’s all I have, is
the hope.
How in the hell did I manage to get through this
ordeal with my eyes? Certainly the love and support of
my family, Carlos, of course, and people like Michael
Graham. Good people caring for good people. That's
what it is about.
My last treatment was October, 2019. I was
scheduled for a 2 month follow up and in January, he told
me everything looks good and another 8 weeks follow up
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in March. The appointment for March was canceled
because of the coronavirus that has attacked the world, so
another follow is scheduled for May. That visit with Dr. J
showed no further treatments at this time, and to come
back in 3 months.
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HEAR, HEAR!
(I wish I could)
So the news about my eyes really did bring music
to my ears. Funny how some idioms work their way into
segues, huh?
And music. I have always depended on my
music...either listening or singing or performing...to see
me through dark times.
A lot of credit goes to the chorus as well because
with music, nothing can go wrong. Ever.
And speaking of music: If someone says, “That’s
music to my ears”, truly it is saying that you are
experiencing something pleasant.
One of the five senses of the human body is
hearing. The body is a remarkable machine. It amazes
me that all of the years that the body functions it does so
with a minimum amount of care or repair. I believe that
when something does go wrong, and I mean really
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wrong, it is devastating to have that body part repaired or
replaced.
As long as I can remember, music has been my
life. You can only imagine how I would have gone
through life unable to hear. I suppose that if I was born
deaf it would be a different story. Luckily, that was not
the case. I remember when I was about five years old,
my aunt gave me an accordion that I’d just loved to hear.
I can close my eyes and picture me playing that
accordion so many years ago. The first song I ever
learned on that 12 bass accordion was “My Dog Towser”.
I didn't even know how to read music at that time, but I
do remember the beautiful sounds that the accordion
made.
As I grew older, my mother and father and my
grandmother all pitched in to buy me a red and white
accordion that was full size. I guess I showed some kind
of interest in that instrument because I played it for many
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many years.
I would hear a song on the radio and try to
imitate the song on the accordion. I liked to play things
my way and not the way the music was written. They
say I had an ear for my music.
I can remember when I was in the third grade and
there was a show-and-tell it in my class, and my teacher
allowed…nay, encouraged… me to bring my accordion
to school and play. I don’t know what I enjoyed more:
the music that I would play or my showing off in front of
the class. Maybe a little of both. During that time of my
life, I believe I wanted to be the center of attention and
one of the ways I knew how to be the center of attention
was with my music.
I really enjoyed playing the accordion because I
think it is one of those instruments that people say, “God,
how do you play that thing??” because that showed an
interest on their part and drew more attention to me
which I ate up. I don’t know if I wanted all that attention
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because I was lonely or because I was a ham. I really do
not remember being lonely as a child but I do remember
wanting to be the center of attention and being a ham as
much as I could.
I guess from the time we are born we learn to take
things for granted in our lives. We learned to accept the
way we are through training and through self assessment.
I remember as a child I always wanted to be taller than I
was that but as the years progressed I learned that I
wouldn’t be. I learned to accept my disease as being a
diabetic, I learned to accept the fact that although I was
not ugly, I wasn’t extraordinarily handsome, and I believe
that taught me to accept other people the way they were.
I have never had problems with my hearing
throughout my younger years, my adolescent years, and
my adult years. It seems that I never had a problem of
hearing, but sometimes I had a problem listening. Don’t
we all?
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I remember in grade school and in junior high
school I sang with various ensembles and it just seemed
that music took my troubles away if only for a brief
moment or two. And then when I went to high school,
the first thing that I wanted to do was to sign up for the
high school a cappella choir. As I was growing up, I
remember listening to Mitch Miller and his band, Fred
Waring and his Pennsylvanians, and the Johnny Mann
singers. The rich deep tones that these choruses were
singing were something that I really wanted to be a part
of. Since I could not join any of these groups, the high
school choir was my next best thing.
I remember taking great pride in being a part of the
high school choir at William Howard Taft High School in
Woodland Hills. I can remember excelling in choir,
always receiving an “A” every semester. Somehow I had
found my niche in school. I sang with approximately 100
voices and the sounds that we made were absolutely
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incredible.
You would never know that what you are
listening to was a high school choir of students who were
no more than 17 years old. We would put on productions
several times during the year for the school. We would
assemble in the auditorium and put on musicals and sing
songs from different Broadway shows. It was probably
one of the fastest classes I had all day. When class was
over at 10 minutes after 10:00 AM, I could not wait for
the next day to come back and do what all over again. I
remember our choir teacher, George Turner, who at that
time must have been in his sixties. I say that looking
back realistically; although when I was in school I
thought he must’ve been 85 if not older. I don’t
remember how many kids in the class liked him or not,
but he was very musical and always knew what he
wanted. That class just seemed like a natural for me.
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Grab the wheel, Mike. You’re swerving. I know
this chapter is not supposed to be about music, but I’m
leading up to things.
After I graduated from high school and entered
college, the first class I wanted to join was the college
choir. Even though I was only 18 when I started college,
the choir just seemed to call out to me. I remember my
first day of college choir. The instructor was Marian
Vree... I will never forget that name because the way she
put it to us the first day of class was “if you have trouble
remembering my name, just remember ‘the best things in
life are Vree’ ”. That would have been the time for me to
say, “Uh….I work alone…”
She was a brilliant lady who also knew what she
wanted. Now I am starting to see something in
musicians: Perfection and meticulous performance.
I remember during college choir at Christmas time
we learned Vivaldi’s “Four Seasons” and when we
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performed that with a full orchestra, I could not believe
that I was in a choir like this being a part of the sound
that we produced.
As I left college and went out into the real world,
my music and my performing were a very big part of my
life.
During my early years of being married at 22 years
old, there were times that I literally ached for people to
sing to. I learned how to play the guitar, and I got
hooked on something new called karaoke. Unless you
lived under a rock, you know what karaoke is. For those
of you who do live under a rock, karaoke is musical
backgrounds for songs that you enjoy singing and
particularly in the arrangements you are used to.
I started to accumulate karaoke music to the point
where I now have probably 600 different songs many of
which... most of which... I have sung in public or
recorded in a studio for the 15 albums I have made.
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I can remember being in the recording studio with
headphones on, listening to the music, and singing along
with it. I felt like I was in a concert hall performing to
1000 people. I remember the deep rich tones that I could
hear in the headphones and the engineer would mix my
voice with the orchestra and at times it felt like I had died
and gone to heaven.
Over the years, I have recorded 15 albums. Those
albums range anywhere from rock and roll to religious to
country and every time I went into the studio to record, I
would usually cut an album in a day. I did not eat, I did
not drink, I did not go to the bathroom. OK so maybe I
did drink a little bit to keep my voice lubricated and
relaxed.
I clearly remember in 1992 when a friend of mine
from church wanted to be a part of a barbershop quartet
for a social that the church was having on the church
lawn. His love of music was equal to mine and we were
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able to locate a barbershop chorus through his uncle who
sang barbershop. We drove one Tuesday evening to
Newhall to see if we can recruit somebody to sing the
other two parts that we needed for this social.
When we got the chorus that was made up of
around 45 people and we heard the sounds that they
made, we were hooked. Once again I felt like I was in a
place where I belonged. We went up there to find two
people who would sing barbershop quartet with us and
we ended up joining the chorus. We managed to find
those other two people who would sing a quartet with us.
We loved it so much that four of us got together on a
regular basis and we had a barbershop quartet named
“What Happened to Bob?”
As the years went on, we ended up leaving the
chorus. I joined another chorus down in the San
Fernando Valley. Throughout the years I spent with the
Valleyaires, I became an integral part of the chorus and at
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times I served as board member, section leader, assistant
director, director, and attended many functions. Once
again I found my niche and was a well respected board
member, director and musician in the chorus. Since all
my life I had such high regard for the music that I heard
and music I made, it was only natural that when I was a
director of the chorus, I insisted on perfection. All that
perfection paid off because we won many awards for our
sound; to sometimes as a member, sometimes as their
director.
In just a few short pages you can see what music
has meant to me all my life. Of course, you depend on
your hearing to be involved in this much music.
Here is where the music stopped: In April, 2001,
the 5th of April to be exact, I woke up with what I thought
was an ear infection. I did not panic because I have had
ear infections before, so I called my doctor first thing that
morning and told him what was happening. Rather than
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having me come in to see him, he called a prescription
for amoxicillin to the pharmacist because what I
described to him sounded like an ear infection. Because
he was my doctor for so many years, he didn’t feel the
need for me to come in for examination.
For some unknown reason, I had lost my hearing
in my left ear. Not only did I lose my hearing, I
developed tinnitus. Now for those of you who do not
know what that is, it is a condition that produces a
ringing or buzzing in the ear when no outside source is
present. Some people have this condition so severely
that they contemplate suicide. I suppose I’m not at that
point yet otherwise I would not be writing this.
The many weeks that passed showed me that this
is not going to go away. After a week of no response to
the antibiotic, my doctor arranged for an appointment
with an ear specialist. Three weeks later, I was at a
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specialist’s office in Glendale. I had become worried
about this that the problem wouldn’t go away.
I was diagnosed with a permanent sensorineural
hearing loss. The cochlear hairs in my ear had become
destroyed and it didn’t appear they would be corrected. I
was doomed.
FAST FORWARD: It had been 14 years since I
developed this hearing condition. You can imagine what
it has done to me all these years not to be able to hear
properly, not to be able to participate in musical
situations. My hearing and listening and singing days
appeared to have come to a close. As much as I love my
music, that stopped, and very abruptly. I could no longer
enjoy conversations, television, movies…you know, the
things in life that everyone takes for granted. Hearing
aids were out of the question for several reasons: I was
very self conscious about wearing them, and really all
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they did was amplify sounds and that was more irritating
than the tinnitus. It really wasn’t an option at this point.
I had not been in a recording studio for many years
and wondered if that would ever happen again.
It didn’t.
In 2014 I got the bug to record again. I just had to
bite the bullet and try as best I could. I still had my right
ear that wasn’t causing any problems. I was afraid to put
a set of headphones on for fear of what I’d sound like or
what music sounded like to me.
I started searching for some music, an album title,
photography, etc. I wanted an album of songs that I didn’t
have to learn, and songs that didn’t require much in the
way of preparation. I had not recorded since 1998 so this
was a big step for me. I love recording, I love
performing.
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The album was titled, “When Sings The Heart”
and included a mixture of love songs that I had learned
throughout my life and were meaningful to me.
I had commissioned a friend who I’d known for a
number of years who had a studio in his home. I met with
him several times recording a couple songs each time I
went over. I decided to stop using him because it had to
be on his time, even though I was paying him for this. He
had schedules to keep and we just couldn’t make it work.
When I wanted to record, he wasn’t available. When he
was, I wasn’t.
The final decision came when I listened to one of
the mixes on “How Deep Is The Ocean” which I had
chosen to open the album…to set the pace for everything
else. He mixed it in such a way that he took the entire
introduction out, thinking it “sounded better” which of
course was not his prerogative nor decision to make.
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I decided to spend some money on equipment and
software and do this totally on my own. I felt I was
intelligent enough to do this, to manage the microphone,
to learn the software.
I had set everything up in the kitchen, and about
11:00 one Friday evening, began to record. There were
several songs I knew wouldn’t make it to the album but I
was using them for testing purposes to be sure I was
doing everything right.
One of those songs was “Cry Me A River” and
when I finished it and mixed it down, I thought it
sounded pretty good. I listened over and over again, until
I was sick of the song. I sent it to several friends, and also
to Carlos for their opinion, for the proofing, if you will,
and everyone came back saying it sounded really good,
especially the crickets in the background for the “river”
effect.
There were no crickets in the background!
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Well…yes there were. I sent only the music tracks
to them, then only the vocal tracks, to see if the sound
they heard (and that I did not because of my hearing) was
on the music track or when I did the actual recording. It
turns out it was on the vocal track, which told me that
when I recorded so late at night, the sensitive microphone
picked up the sounds of crickets in the backyard!
Funny as it may sound now, it wasn’t then, and it
disturbed me that I was not able to hear it. I decided that
any further recording would have to be done in another
part of the house and not late at night.
I brought the laptop (my “studio”) into the
bathroom, set up shop, and began trying to record from
there. Oddly enough, it seemed to work, so the entire
album was recorded in the bathroom. This was my new
recording studio and I felt comfortable enough that more
albums were on the way.
Key word: “were…” Keep that in mind.
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It’s very difficult, nearly impossible, to adjust to
the loss of one’s senses. I really tried to adjust to my
hearing issues; the loss, the tinnitus…so it was important
for me to try and make music. I had to. When I
discovered that the album was coming along, it made me
feel good about myself and that not only could I produce
a sound that was ok, I was able to learn the hardware and
software with no teaching…and no instruction manuals.
This album wasn’t an audition for anything and I
wasn’t doing it for anyone but myself. I succeeded in
that, and of course, it made me hungry for more. I started
planning for the next album, “Live From The Bathroom”
which would actually be a “rock ‘n roll” album, volume
2. Volume 1 was recorded back in the 80’s with songs
from the 50’s and 60’s that I really enjoyed. It just
seemed like a natural place for me to be: Inside a
recording studio, or in this case, inside a bathroom.
Technology advances, you know…
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“When Sings The Heart” was released on June 21,
2014, on my mom’s 93rd birthday. She was living in an
assisted living complex by then, and she was still able to
hear the album and enjoy it. The last song on the album
was “You’ll Never Know) and when I played that for her,
she sang along. (Sang. That’s a good one. Mom couldn’t
carry a tune if it were in a basket.)
Months would go by with my getting ready to
record again. Songs were being chosen, pictures were
being decided upon for the album cover. I was well under
way to start another project after the holidays. I felt good.
On January 22, 2015, my 68th birthday, I once
again woke with another hearing issue, this time in my
right ear. Once again, overnight, and severe. Worse than
the left side 14 years before. I panicked because it was
my only good ear; the one I depended on for everything.
Music. Television. Telephone. People. Life.
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A quick call to my doctor to arrange an urgent
appointment with an ENT found me in an ENT office
within a day. I visited Marc Cohen, the ENT doctor who
has since become my specialist of choice with my
hearing. He said also that this is the same condition as
my left ear so many years ago. He offered little, if any,
hope for a recovery. Sounds became muffled; music
became noise. Movies with explosions were unbearable.
Television was out of the question. Closed captions
became my best friend.
I received an authorization to see the House Ear
Clinic in Los Angeles and visited with Dr. John House (I
always went for the top guy….) and he said basically the
same thing. Nothing can be done. At one point he
suggested a cochlear implant…if I was a candidate…but
the idea of surgery and a clamp-type device on my head
was not appealing to me. Besides that, he said, it may not
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work, and may even cause further damage. I’ve since
decided no.
I was fitted for hearing aids at Costco a couple
years ago, and to be honest, I hate them. They amplify
the sounds, yes, but everything is distorted and muffled
to the point that it’s disturbing to even try and hear with
them. I don’t feel at all intimidated by saying I have a
hearing loss, especially when talking on the phone. I have
to speak through the handset speaker in order to hear
anything at all.
Look at this chapter: Well over 50 pages and we’re
just on eyes and ears!
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WHO NOSE?
There really isn’t much I can say about my nose.
Well, there is, but we’ll let the nose jokes alone.
I was probably a teenager when I was busy making
my skateboard out of a 2 x 4 and roller skates. Picture a
two foot 2 x 4, completely raw. Then you take a
shoe-skate (the kind with the metal wheels and the crank
on the side that only a skate key would tighten and loosen
them. Not like the skateboards the kids have today; the
streamline model with the fancy paint jobs and the
custom made wheels. I remember lining the skates up
with the edge of the wood, and taking big ole’ nails and
pounding them into the wood, and when both ends of the
2 x 4 had skates on them, it was done. I wasn’t getting
the wheels on the wood right which meant I had to take
my trusty hammer and remove the nails, reposition the
skates, and start over.
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I wasn’t terribly bright when it came to tools so
when it came time to remove the nails (and we’re talking
big nails, not “picture hanging” sissy nails. We’re talking
big, mean MAN nails) I had to remove them with the
claw end of the hammer. You all know what that is.
These nails were about 2” long and very thick. They were
typically used for construction and not really designed to
hold skates on a piece of wood for a kid to use as a
skateboard.
Once a nail that size is embedded in a piece of
wood like that, the best thing to do would be to cut the
end off and start over. But I didn’t know that then, so I
take the end of the hammer (designed for nail
removal…the “claw”) and try like hell to take out the
nails. The first couple of nails came out pretty good. I
was getting confident about this, so when I went to
remove the other nails, not realizing how deep they were
and how strong those nails were, I started to struggle with
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that pesky claw end of the hammer and the resistant and
reluctant nail.
I pulled; I twisted, I struggled. Nothing.
Just as I am getting the upper hand of this, the
hammer slips off the head of the nail, and I pound that
hammer directly into the bridge of my nose.
I believe I cried at the pain I just caused myself.
Nose bleeding, me screaming, I ran into the house to an
angry mother who wanted to know what stupid thing I
did that caused this.
I explained the skates, the wood, etc, and she
wasn’t really happy about deciding that I need to go to
the doctor.
X-rays showed that the blow to the nose (I
know….blow…nose…) caused the nose to break at the
bridge. I know the nose is cartilage and not bone, but
nonetheless, I had a broken nose. Insert “smell” jokes
here.
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I know that broken body parts generally require a
cast, so you can imagine the questions I had for the
doctor as to how they’re going to put a cast on my nose. I
didn’t know better. He explained to me that they don’t
cast “noses or toeses”…and with that, he taped my nose
and put gauze in my nostrils (to stop the bleeding) and
off I went.
Needless to say I looked absolutely hysterical.
That tape stayed on for a couple weeks while my nose
healed. I wonder what taping a nose really does to
encourage healing…I wonder.
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SWALLOW…..
Not much has ever happened to my throat other
than occasional colds and sore throats, and the infrequent
(but so welcomed by others…) laryngitis. People used to
love it when I couldn’t talk. I never knew why…though I
do now.
Just very recently (well, 2012) I had planned to
sing at my step-father’s memorial service, and the
Monday before it, I started coming down with a cold. I
thought it was a cold. The memorial service was to be
held on the following Saturday in our backyard, hosting
about 75 people.
As the week went on, I thought it would be best to
see a doctor and get some antibiotics before the weekend.
That Thursday, the doctor confirmed that my now totally
silent voice was in fact bronchitis. When I say I couldn’t
speak, I truly could not utter a word. I was loved by the
world.
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It was important to me to be able to sing at his
gathering. I loved to sing, I loved to share my music with
anyone. Now I’m being silenced by a viral infection that
left me voiceless. Not only could I not sing, I could not
speak, and I was the one conducting this memorial. I
really felt like I had let him down. I had the microphone
all set up, and the sound carried well in the backyard. But
I couldn’t utter much, and singing was out of the
question.
The best I could do was play a pre-recorded
version of the song I wanted to do: “Till
Tomorrow”…and I thought perhaps I could lip-sync it.
But people would have known.
Instead, I played the pre-recorded version and just
sat down. It was very disappointing because I really
wanted to do this for Mom and the guests, but mostly for
myself.
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So here we are: 2020, no hearing, no further
enjoyment of the sounds that bring the world closer
together. Without the hearing aids, I live in a world of
silence. When I tell people it’s devastating, they say,
“boy, I hear ya!”
But I don’t.
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I often wondered how my mind would age. I am
finding more often now that as I age, I am forgetting
things. Nothing Alzheimer’s, mind you (but don’t think
that hasn’t been thought of) but things lately have
bothered me: Am I going to suffer another heart attack?
A stroke? It happened to both my parents in their late
years and I watched them suffer. Something I don’t want
my family to have to do, and certainly not my husband.
When I was younger, and considerably healthier, I
really never gave my mind or my brain much thought.
They were just there, doing what they’re supposed to be
doing and not causing any problems. You know, the way
life should work.
I used to work in my younger years; Orange Julius,
a few banks, a department store, a donut shop, large
companies and until I retired, I really gave no thought to
how my brain and mind was working.
As I age, though, now into my 70s, I get
concerned. Maybe it’s a normal thing at this age, but I
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seem to forget things I shouldn’t be forgetting. Oh, I still
remember friends and their names and I still remember
how to drive and where I’m going.
Sometimes. (insert LOL here)
There are times when I am out, I forget what I
went out for, and where I’m going next. Normally I don’t
write things down but lately I’ve found that I need to do
that or else I’ll forget. Sometimes I’ll forget where I’ve
gone; sometimes I’ll forget to fix dinner, or what there is
to fix. So far I’m just calling this Old Timers rather than
Alzheimer’s but it does concern me. My dad suffered
from a stroke many years ago but all it did was leave him
blind in one eye and no other issues. My mom had some
mini strokes in 2008 and recovered nicely. In 2011 she
had a major stroke that left her another woman. One I
didn’t know. She was left a woman who was very
combative with people who were trying to help her. She
wouldn’t buy into the stroke; she felt nothing was wrong.
Nothing wrong with her mental status, nothing wrong
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with the way she was treating people. I am not feeling
those pangs that she felt and I think I’m still in a stable
mode…but I worry about what can happen.
I had a heart attack and 4 way bypass surgery in
1996 with no issues since then, but with my heart
weakened and my chronic diabetes, there’s no telling
what can happen upstairs.
I often go to bed at night wondering what may
happen during my sleep…especially when I’m alone
without Carlos. It scares me. To the point that I take a
5mg of Ambien each night to ease me into sleep and it
seems to work, even though I do wake up during the
night. I don’t remember the last night I had a full
complete night’s sleep.
At times I think to myself, “what happens if”?
How will I react? Will I be able to summon help? Will I
remember what I’m supposed to remember? Will I
remember who Carlos is?” Towards the end of her life,
Mom didn’t know who we were; she would think I was
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her father; she didn’t remember her children’s names, and
even with me looking at her face to face, she had no idea
who I was. That was such a blow.
That’s what I don’t want. I don’t want to go that
way. I don’t want my children to come and see me and
have me go, “who are you?” or God forbid Carlos visits
with me and I ask who HE is.
So far I seem to be doing OK, but like the title of
the chapter says, “The Mind Is A Terrible Thing to
Waste”
Sometimes when I’m out driving I visualize having
a stroke, all by myself, and not knowing what to do.
What will a stroke do to me? Will it be mild? Strong?
Disabling? Will I be able to talk? Write? Think? Live?
Last night I was telling Carlos that my life isn’t in
a real happy place right now. I can’t do the things I used
to do; I’m older now and sometimes I feel my health is
deteriorating to the point that I may not make it much
further. Other times I feel on top of the world. But last
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night, I just felt like my health was taking over. I don’t
have fun anymore; I can’t get around like I used to. I
spend a lot of time in my room watching game shows on
TV with the sound streaming into my hearing aids. The
sound is tinny, sometimes distorted, certainly not
enjoyable. I can't enjoy music anymore because of my
ears. I can't enjoy concerts. Movies. Conversations.
Sometimes I even wonder why I’m still around, to be
honest.
I’m not feeling sorry for myself or getting
depressed, though you couldn’t tell that from what I’m
writing. Sometimes I think we all get in frames of mind
like that and just wonder “what’s next?” or “when is this
going to stop?”
These are fears I have, and have had for a number
of months now, and the thought of mental incapacity
frightens me.
It scares me to death.
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This getting old crap is for the birds. Whoever said
these were “golden years” should be shot. All I can say
is, never get old.
It’s a trap.
In the early 90s, I developed a pain in my right
shoulder. A dull ache, and after seeing an orthopedic
doctor at Kaiser (David Kull, M.D.) he diagnosed it as
“bicep tendonitis”. We tried several treatments, exercises,
any type of non surgical means to help. I got very little
relief from those treatments, and when it got bad enough
that I couldn’t put a shirt or jacket on, we decided the
best thing to do was to bite the bullet and do the surgery.
The procedure is called “bicep tenodesis” and is
performed under general anesthesia...a real operation...for
the big boys.
I don’t even remember the year, and it’s really not
important but after this was done, I was no sooner
recovered when the other arm started acting up. I knew
fully what to expect, and away I went for another
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procedure. These were probably several months apart.
These surgeries are pretty routine so I went through them
well and recovered without a hitch.
In early 1996 I began to not feel well. Could it be I
was stressed? Could it be work? Could it be the flu? At
that time I was being seen by a new doctor, Dr. Jay
Iinuma, who was assigned to me through Cigna
insurance. Jay and I seemed to click from day one. It was
always a pleasure to go see him and speak openly.
I hadn’t been with Dr. Iinuma for a long period of
time when, on April 3, 1996, I was taken to urgent care
suffering from what I thought might be the flu. I was so
ill I could not get out of the car to go inside. A
wheelchair was brought to me, and they hustled me into
the office. What happened went all too quickly. As I was
being examined on the table, I started having extreme
heartburn, followed by severe vomiting.
I was diagnosed with RLL Pneumonia (right lower
lobe, I find out) and needed to be hospitalized. I was
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taken to St. Joseph Medical Center in Burbank for
antibiotics and care. I figured I’d be there about a week,
and could leave when I got better.
Think again.
While there, I experienced more heartburn and
vomiting, and the next day, a doctor I had never seen
before came in. He sat down calmly and said, “the
episodes of vomiting and heartburn are indicating a heart
attack.”
“A heart attack?? Are you sure??”
“We are. And we are transferring you to Good
Samaritan Hospital when you are stable enough to go.”
This started to concern...no, worry...me. What
could Good Samaritan do that St. Joseph couldn’t?
“It’s one of the finest cardiac hospitals in the
country. You’re going to need an angiogram to see how
much damage this has caused.”
I could NOT believe what I was hearing.
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I was transferred by ambulance to Good
Samaritan, a ride that lasted about 45 minutes. When I
got there, I was visited by yet ANOTHER doctor (gees,
where do they all come from??) and said based on the
tests and xrays, he is recommending an angiogram of my
heart.
Google cardiac angiogram so I don’t have to
explain it.
I was able to watch the procedure on the screen
they were using, and the doctor was pointing out the
areas he suspected were blocked. 3 arteries were 90%
blocked, one artery was 75% blocked.
“I am going to recommend immediate bypass
surgery on you for at least 3 vessels, probably 4.” he said.
WAIT A SECOND! WHAT??? OPEN HEART
SURGERY? AT 49 YEARS OLD??
This can’t be. It just can’t. The panic set in and
while you’d think I was fearful for my life at that point,
the only thing I could think of were explicit stories I had
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been writing and that if I died, those stories would be
revealed and the whole world would know of a secret that
only I knew. I was more concerned with that than I was
about the surgery.
The doctor came into my room that afternoon, and
said that I’ve been cleared for a 4 way bypass, called a
Coronary Artery Bypass Graft (CABG) for 4 vessels,
(medically known as CABGX4). I was scheduled for this
open heart surgery for 7:00 the next morning.
That evening, my hospital room was overtaken by
visitors: My mom, Georgia, my mom’s stepdaughter,
Jeannette, and my best friend Marla. It was a crowd for
such a small room.
Thursday morning, April 11, 1996, I was wheeled
into surgery. I must have peed my britches at all this. I
don’t know. Who cares?
Surgery lasted till about noon, and I was taken to
intensive care for recovery and recuperation. Thursday
afternoon became a blur. At one time I remember them
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getting me up out of the bed….the day of surgery...and
putting me in a chair. My brother had come up from
Orange County to be with me because it scared him to
death. I remember sitting in the chair, literally drooling
and being so “out of it” I couldn’t function. Allen, Mom
and Georgia were there seeing me through this.
Saturday morning I was transferred back to my
room and to continue to heal. Sunday I remember Rose
Salter and Sharon coming to visit me and we all walked
down the hallway to the visitors room.
The staff and doctors were impressed by my
recovery that they decided it was OK to go home the next
day.
I came home Monday, April 15 after this whole
ordeal. It was a struggle to walk up the 3 steps to the
house and start regaining my strength.
That week, one evening during the night, I had to
get up to go to the bathroom, and when I came back to
bed, I apparently looked into our closet door mirror (floor
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to ceiling mirrored doors) and saw my reflection, and
forgetting they were mirrors, thought someone was in the
room with me. I almost had heart attack #2.
As the weeks went by and I was in recovery, I was
reminded by the doctor that I need to keep active and
continue to walk. I knew how important this was so one
beautiful spring day, late morning, I started on my trek
around the neighborhood. I walked to the corner...then
walked to more corners down Wentworth Street. When I
got to the end of the street, instead of going back home, I
continued. I walked another few blocks to Tonopah
Street...I continued the many blocks until finally, at a
point of no return, I sat on someone’s lawn, crying. I
didn’t know what to do. Do I go back home? Do I
continue? What lay in front of me was the pedestrian
underpass to the freeway and I knew that if I took that
route, I’d end up on Laurel Canyon Blvd, by now far
away from home. It was closer to push on than to turn
around and go back.
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I walked up Laurel Canyon Blvd. to about a block
before my next turn that would have taken me home. I
thought this might be the time to go to Georgia’s office
that was within eyeshot, and have her take me home
which was literally around the corner.
Another time while recuperating, shortly after that,
I decided to visit Universal Studios on a weekday when it
wasn’t really crowded. I had been cleared to drive after 3
weeks of post-op, so I drove to Universal, probably 5
miles away from home. I had a season pass that was
about to expire and I thought, well, why not?
It was around 11:00 that morning when I arrived at
Universal Studios Hollywood, and I knew I had to take it
easy but I just wanted the fresh air and exercise.
After entering the park, I wondered if this was such
a good idea.
I was wearing shorts and a tank top, and the
prominence of my new scar was very visible. I guess I
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had no pride. I was comfortable and that’s all that
mattered.
Once inside the park, realizing maybe I shouldn’t
have done this, I sat down at an outdoor restaurant
because I just couldn’t go any further. It was not
intentional to ride any of the rides but I did go on their
tram for a tour of the studios. I was sitting down, I was
comfortable, and when they dropped me off at the end of
the tour, I thought it might be time to go back home.
This happened all in 1996, and here we are today,
May 28, 2020, and I haven’t had any issues since.
And I hope I don’t.
I really hope I don’t.
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Alright, get your minds out of the gutter.
Speaking of happening below the waist, in 2015
my nephrologist (kidney doctor) ordered an ultrasound of
my bladder because I was complaining to him about
excessive urination and not feeling I was emptying my
bladder. The ultrasound revealed that in fact I was
retaining urine - not a good sign because that can cause
uremic poisoning that could lead me to end up like the
proverbial doornail...dead.
He sent me to a urologist who, after performing a
cystoscopy, said that the previously presumed enlarged
prostate was not that at all. It was something called a
neurogenic bladder. We attributed it to neuropathy that is
caused by the diabetes, and the neuropathy has attacked
my bladder and wouldn’t let it function properly, which
was why I was retaining the urine. The nerves in the
bladder would not function properly therefore the urine
just sat there.
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It was then the doctor said that I would need to use
a catheter to pee...for life.
I was given the choice of either having a Foley
catheter inside permanently, and changing every couple
months, or an intermittent catheter that I use myself
whenever I had to pee. Peeing by myself was not an
option anymore. Before my eyes I was turning into an old
man.
And here we are 5 years later, still using the damn
catheter so I can pee, because of neuropathy in my
bladder. Thank you very much diabetes, for truly fucking
up my life.
Now, using a catheter 4-6 times a day really isn’t
as bad as you would think. It’s not painful, and I’ve
gotten used to it, and I’m pretty good at it. And while it’s
not painful, I told the doctor it’s a pain in the ass to have
to do it. He said, “A pain in the ass? Then you’re not
doing it right.”
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Every doctor thinks he’s a comedian.
I carry catheters everywhere. My bag, my car, my
luggage, bedside, bathroom. I go nowhere without them
because if I don’t use it, it’s possible for my bladder to
burst because the urine won’t come out. Whenever I have
surgery, I always ask for a Foley to be inserted so that’s
one less thing I have to worry about as I recuperate in the
hospital. How many other people ask to have a catheter?
Not many, I’m sure.
So what else is below the waist? Not much.
I’m OK back there.
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A little further south, though, around the knees: In
1963, I broke my knee cap while I was chasing my
cousin Mark across the street where he lived, and I ran
into my car and hit my knee on the fender. More on that
in another chapter.
Sometime during the 1980s while I was working at
the telephone company, as I was coming back from a
break I entered into the office and because the office was
in a maze type of a design, it was challenging to walk
through the entire office in a straight forward motion. I
proceeded to my desk but had to make a sharp right turn
next to someone's desk who had left the desk drawer
open. It immediately brought me down and I had to see
an orthopedic surgeon to find out why the knee was not
healing. The doctor told me that the collision had ripped
my meniscus ... The cartilage between the bones in the
knee. It required surgery to repair and I was out of work
for about 8 weeks after the surgery. On a scale of 1 to 10
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as far as surgeries go this was probably a 3. This was not
a serious or complicated surgery but yet it was still
painful.
Through the years and probably because of age I
have had many surgeries on my knees for a torn cartilage.
I know what to expect. It is more inconvenient than it is
painful.
Further down the leg I would be remiss in not
mentioning the neuropathy that developed in 1983. I felt
some tingling in my feet and in my toes. And while it
wasn't painful, it was concerning. I spoke to my doctor
about it not knowing what it was and he mentioned it
could be the start of what is called diabetic neuropathy
where your nerves start to die off. Over the years it could
turn out to be very painful.
No kidding.
The neuropathy never went away. It has settled
down a bit, but there are times, especially at night, that
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