Autism Asperger's Digest

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contents columns features

on the cover

Cover photo courtesy of Mieke Kramer, Board, Danny’s Farm. 6 | The Way I See It 14 | Taking the First Step:
Too Much Screen Time Has a Bad Go for a Hike!
Danny and Jim Gott (a well-known baseball Effect on Child Development 10 Easy Tips to Start a New Adventure
pitcher and coach) are pictured on the Temple Grandin, PhD Elizabeth Irish, MLS, AHIP
cover of this issue of the Digest. He and his
wife Cathy created Danny’s Farm because 8 | Perspectives 18 | Executive Function: The Chief
“Danny [Gott] always had a tremendous 10 Things Your Child with Autism Executive Officer of YOU
affinity for animals, and we were thinking Wishes You Wouldn’t Share (on Social How to Take Control of Your Life
of healthy ways that Danny, who is on the Media) Cara Koscinski, MOT, OTR/L
spectrum, could work and thrive as an Ellen Notbohm, BS
adult,” says Cathy. Danny’s Farm offers a 20 | Get Your Child (with Autism)
nurturing, petting farm for children and 10 | An Aspie’s Tips for Teens Out and Do a Lot of Things!
adults with autism spectrum disorder Welcome to the Great Outdoors ‘‘Getting Out” Not Only Expands a
(ASD), as well as others. Jennifer Cook O’Toole Child’s Knowledge and Physical Well-
Being, It Also Can Result in Jobs
36 | The Digest Book Corner Joanne Lara, MA, CTC Ed Specialist
Reviews on:
1) The Chicken Who Saved Us: The 30 | The Art of Autism
Remarkable Story of Andrew and The Art of Relationships
Frightful; 2) The Out-of-Sync Child Grows Alix Generous with Keri Bowers
Up: Coping with Sensory Processing
Disorder in the Adolescent and Young 34 | What Every Parent Needs To
Adult Years; 3) Autism Adulthood: Know Before Their Autistic Child
Strategies and Insights for a Fulfilling Gets Anesthesia
Life; 4) Whole Child Reading: A Quick- An Extra Step to Keep Your Child Safe
Start Guide to Teaching Students Anita Lesko, BSN, RN, MS, CRNA
with Down Syndrome and Other
Developmental Delays; 5) Teaching Math extras
to People with Down Syndrome and
Other Hands-on Learners: Strategies and 29 | New Products: DiscJam
Materials, 2nd Edition An Innovative Device to Help People
Lyn Dunsavage Young with ASD Learn and Have Fun

Image Credits (DP=Depositphotos, IS=iStock, DT=Dreamstime) 33 | New Products: Focus Desk
How to Assist Your Students with Their
Page 6: DP/papa1266 Page 12: DP/RobHainer Page 20: DP/racorn Concentration
Page 8: DP/zamuruev Page 14: DP/lzf Pages 20–27 (leaf): DP/cidepix
Page 10: DP/ongap_ Page 18: IS/fandijki Page 30: DP/Kenterville 38 | Life with Mr. M
Page 11: DP/belchonock Page 19: DP/rastudio Page 36: DT/Hannu Viitanen An Amusing Child’s Perspective
Angela DeMuro

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3www.autismdigest.com | February – April 2017

editor’s note questions?

LET’S GET OUTDOORS! Danny could work and thrive as an How do I renew?
adult,” says Cathy. Renew online at autismdigest.com using PayPal
P. Jonathan Young, PhD, PE or at FHAutism.com using a credit card, by calling
Managing Editor Danny and Jim Gott (a well-known 800-489-0727, or sending
baseball pitcher and coach) are a check, payable to “Future Horizons” for the
A major theme for this issue of the pictured on the cover of this issue of amount indicated, to:
Digest is encouragement for children the Digest. Cathy and Jim came up with
and adults with autism spectrum the idea of Danny’s Farm ten years ago, Autism Asperger’s Digest,
disorder (ASD) to go outside and which is when this picture was taken. 721 W. Abram Street, Arlington, TX 76013
exercise. Elizabeth Irish says to “Take Their program is a precursor of what
a Hike.” Jennifer O’Toole welcomes her more and more parents and siblings Where can I buy single issues?
Asperkids to the Great Outdoors, to feel are doing, which is to create businesses Single copies of the current and back issues are
the sand between their toes. She knows that are particular strengths for those available for purchase as PDFs at autismdigest.
what we, as human beings, do best is on the spectrum and to hire others on com/subscribe/. You may also buy single issues
to “mess around with, poke, turn over, the spectrum to make it even more on the Apple Newsstand and Amazon Apps Store.
stroke, and generally ‘manipulate’ the successful. Unfortunately, they have AADigest is not sold in stores.
real sights, sounds, scents, touches, and learned the hard way that someone
tastes that make up our world.” Temple on the autism spectrum—no matter When will my issue arrive?
Grandin counsels that the best way their talent or prodigious knowledge— Expect it to arrive by the first week of the issue
to prepare for a job is to put down the finds it almost impossible to get a job month. Subscriptions mailed outside the US take
electronic screens for a while and learn (with approximately an 80% lifetime four to six weeks to arrive.
social interactions by playing outside unemployment record for those on
with your peers. the autism spectrum)! They’re trying What happens if I move?
to reverse that horrible statistic, You must tell us directly. We cannot replace
Joanne Lara provides the central beginning with their own kids. copies of AADigest we already sent to your old
article for this issue of the Digest address if we were not notified of the address
with the instruction to “Get Your We hope this issue will not only change ahead of time. Please call 800-489-0727
Child (with Autism) Out and Do a provoke your kids to get out and enjoy or email us at [email protected] with your
Lot of Things!” She emphasizes that the world, we hope it will also give address change.
“getting out” not only expands a child’s parents serious food for thought of
knowledge and physical well-being, what you can do or where you can How do I subscribe to the digital version?
it can also result in jobs. Joanne go to help your child get a job, so he Apple Newsstand: The app is free; the
describes six programs devised by can live a fulfilled and, hopefully, subscription is $24.99.
innovative and caring groups that 1) independent life. Amazon Apps Store: Sign up for our
invite kids and adults on the spectrum 30-day free trial subscription for Kindle; it will
to experience the outcome of what Jonathan auto-renew for $24.99.
they produce or do; and 2) offer jobs to
those on the autism spectrum as part Editorial Policy
of their programs. The information and advertisements included in Autism Asperger’s Digest are not intended as
a substitute for obtaining an individual evaluation of your child and the advice of a qualified
One of these programs is Danny’s health professional trained in autism spectrum disorders and should not be interpreted as
Farm, which offers a nurturing petting providing medical or legal advice.
farm with goats, sheep, mini-horses, The information and endorsements expressed herein by authors and advertisers do
and mini-sheep to focus on a social not necessarily reflect the recommendations of AADigest or its publisher. Inclusion of
environment for children and adults information and advertisements does not constitute endorsement of such information nor
with autism spectrum disorder (ASD) of the products or services advertised. Advertisers and advertising agencies assume liability
and other developmental disabilities. for all content of advertisements printed in AADigest and therefore assume responsibility
Jim and Cathy Gott created the facility for any and all claims. AADigest does not receive any financial consideration in exchange for
because “Danny [Gott] always had a editorial mention or articles chosen for publication.
tremendous affinity for animals, and
we were thinking of healthy ways that

4 Autism Asperger’s Digest | February – April 2017

columnists + regular contributors

Temple Grandin, PhD* Ellen Notbohm, BS* Cara Koscinski, MOT, OTR/L* Managing Editor
www.templegrandin.com www.ellennotbohm.com www.PocketOT.com P. Jonathan Young, PhD, PE
[email protected]
Temple is an internationally Ellen is the author of Ten Things Every Cara is a long-time pediatric
respected specialist in designing Child with Autism Wishes You Knew, occupational therapist, speaker, and Editorial Assistant
livestock handling systems. She is the and three other award-winning author of The Pocket Occupational Rebecca Kanney
most noted high-functioning person books on autism. Therapist books. She is the mother to
with autism in the world today. (photo by Andie Petkus Photography) two sons with autism. [email protected]

James Ball, EdD, BCBA-D Dr. Jed Baker, PhD Angie DeMuro* Creative Director
www.jbautismconsulting.com www.jedbaker.com www.angiedemuro.com John Yacio III

Jim has been working in the field Jed is the author of six award-winning Angie is a published children’s [email protected]
of autism for 20+ years helping books, including No More Victims, No author, illustrator, and cartoonist.
children, teens, and adults with ASD. More Meltdowns, and a series of social Her comic strip Life with Mr. M.— Advertising Sales
Learn more about Jim’s consulting skill manuals. He also directs the featuring a boy with Asperger’s— Lyn Dunsavage Young
services company on his website. Social Skills Training Project. appears in every issue of the Digest.
[email protected]

Customer Service
Sherri Barker, Manager

Advisory Board
Ed Arranga

Tony Attwood, PhD
Jed Baker, PhD

James Ball, EdD, BCBA-D
Sean Barron

Michael John Carley
Barbara T. Doyle, MS

Kari Dunn Buron
Catherine Faherty
Michelle Garcia Winner, CCC-SLP
Peter Gerhardt, PhD
Sam Goldstein, PhD
Linda Hodgdon, CCC-SLP

Sally Huggett
Elizabeth Irish, MLS
Cara Koscinski, MOT, OTR/L
Martin L. Kutscher, MD
Patricia Lemer, MEd, MS
Lucy Jane Miller, PhD, OTR
Jerry Newport, BA
Kathy Oehler, MS, CCC-SLP
Margaret Oliver, MEd
Jamie Pacton, MA
John Elder Robison

Bobbi Sheahan
Stephen Shore, EdD
Sheila Wagner, MEd
Lillian E. Wong, Esq

Jim Yerman

Printing and Distribution
Johnson Press of America

Jennifer Cook O’Toole* Joanne Lara, MA* Keri Bowers* Autism Asperger’s Digest is a
www.asperkids.com www.autismmovement www.normalfilms.com division of Future Horizons, Inc.
therapy.org
Jennifer O’Toole, winner of the Keri is a mother, advocate, 721 W. Abram St.
2012 Temple Grandin Award, is Joanne is the founder of Autism speaker, filmmaker, co-founder of Arlington, TX 76013
an Aspie (married to an Aspie) Movement Therapy (AMT), the recipi- The Art of Autism (www.the-art-of-
with three Asperkids of her own! ent of two Autism Speaks grants, was autism.com), and owner of Normal 800.489.0727
Jennifer is the author of five books, the autism expert on the Fox show Films. Her films, Normal People
including the newly released The Touch, and is core adjunct faculty at Scare Me, The Sandwich Kid, and © 2017 Entire contents by Future
Asperkid’s Game Plan. National University in Los Angeles. ARTS, are films about possibilities, Horizons, Inc. All rights reserved.
disabilities, and the arts. No part of this publication may
* in this issue
be reproduced, in whole or in
part, in print, via audio, in existing

or future-developed electronic
means without prior written
permission of publisher.

5www.autismdigest.com | February – April 2017

THE WAY I SEE IT by Temple Grandin, PhD

Too Much Screen Time Has a
Bad Effect on Child Development

At conferences, more 1. They learned how to work at a young is that the video does not react to the
and more parents of a age. I have written extensively child’s responses in the same way
recently diagnosed teen about this. as another person. As a result, today,
or elementary school Michael Robb recommends no more
child have told me that 2. In my generation, kids played than 10 hours of screen time a week
they (the parents) may be on the autism outside with their peers and learned until kids are in high school. This is
spectrum. In some cases, they have an social interactions. They were not the same rule my mother enforced for
official diagnoses and, in other cases, glued to electronic screens. TV watching.
they do not. Almost all the parents
who have been told their child is on "Limit video watching, video Electronic Device-Free
the autism spectrum have worked
successfully in a variety of occupations, games, and other non- Times
even though they now suspect they
might also be on the spectrum because school screen time to 10 Both specialists recommend that
their child has been diagnosed. In every family have specific electronic
most of these cases, the child had no hours a week." device-free times so they can interact
early childhood speech delay as a and talk. There should be at least “one
toddler. The question is: Why are the In the September/October 2016 Carlat device-free meal per day” where both
parents’ lives relatively successful but Report of Child Psychiatry, I read two parents and children turn off and put
their child is now having problems articles that offered a great “light bulb” all electronic devices away.
with a lack of friends, bullying, or being moment for me. One was written by
extremely hyper and anxious? When I Mary G. Burke, MD, psychiatrist at In her practice, Dr. Burke has
was in college, I had friends who today the Sutter Pacific Medical Foundation observed that reducing the use of
would at least be labeled “geeky” and, in San Francisco. The other was an electronics improves symptoms of
possibly, would have been labeled as interview with Michael Robb, PhD OCD, panic attacks, and hyperactivity.
having autism. of Common Sense Media. Dr. Burke The Centers of Disease Control and
explained that both babies and Prevention reported that in a four-year
There may be two reasons why both children need to engage with other period from 2003 to 2007, attention
these mildly autistic parents and my people who react to their behavior. The deficits increased 22%.
geeky classmates in college got and problem with watching endless videos
kept decent jobs: Children and families need times
when they can interact without
interruption from screens. One study

6 Autism Asperger’s Digest | February – April 2017

showed that a session of five days 2. Limit video watching, video games, Uhls, Y.T. et al. (2014) “Five days at outdoor
at an outdoor nature camp with no and other non-school screen time education camp without screens improves
electronics improved the ability of to 10 hours a week. preteen skills with nonverbal emotion
middle school children in reading cues,” Computers and Human Behavior,
non-verbal social cues. A farmer who 3. Engage the entire family in 39:387-392.
ran a summer camp for 8- to 11-year- activities in which people have to
olds had an interesting observation: interact with each other.  Temple is an internationally respected
During afternoon periods of free play specialist in designing livestock
in a walnut orchard, the boys sulked References handling systems. She is also the
around for two days. On the third most famous person with autism in
day, she said a switch flipped and CDC Mobility Mortal Weekly Report (2010) the world today. She is the subject
they discovered free play. My three (44):1439-1443. of the Emmy Award-winning HBO
recommendations are as follows: biopic Temple Grandin. In addition
Attention Deficits Increased 7.8% to 9.5% to writing several books and articles
1. Have one electronic device-free 2003-2007, 21.8% increase in four years. on the subject, Temple often speaks
meal per day where EVERYBODY— at conferences. She also hosted a TED
including parents—puts away all “Increasing prevalence of parent reported Talk about autism in 2010.
screens. attention deficit/hyperactivity disorders
among children,” United States 2003-2007.

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7www.autismdigest.com | February – April 2017

PERSPECTIVES by Ellen Notbohm, BS

10 Things Your Child with
Autism Wishes You Wouldn’t
Share (on Social Media)

L ike any warm-blooded belief that every thought that passes Can We Not Talk?
parent, my friend flushed through my head is irresistibly witty,
with delight when her profound, or original, demanding Here are things your child with autism
daughter handed her a of publication? Boring my readers wishes you wouldn’t share on social
lovely crayon-inscribed and embarrassing myself are the media:
homemade card. On the front, it read lesser of my concerns. My primary
consideration runs deeper: How will 1. Poop stories, and their subsets. Your
“Happy Mother’s Day, Mommy! Even my children perceive me? How will child isn’t the first nor last to smear
though ...” what I post about them affect our feces, fail to make it to the toilet,
permanent, forever relationship? produce eye-watering smells or
But my friend’s warm-blooded The Big One that cost $230 for Roto
glow cooled to mortification when she Parental oversharing on the Rooter. Ditto for discovering the
opened the card: Internet has become an epidemic elastic properties of snot, producing
right along with autism. Why? Some a trendy new shade of barf, or fan-
“... your breath smells really bad in will say parents do it to seek support drying his private parts.
the morning!” from others in similar circumstances
or to raise autism awareness. One 2. “Please shut up!” What creatures
Then there’s the child whose parent blew off my concerns about of short memory we parents can
science worksheet instructed him to oversharing, saying “I don’t mind be! Our hearts break, even as our
illustrate his understanding of solids, putting myself out there,” but he’s also tempers fray when we endure
liquids, and gasses. For the latter, he putting his child out there, without our child’s meltdowns, wishing
drew a grimacing fellow in a baseball the child’s permission. I wanted to ask, with all our being that s/he could
cap labeled “Dad,” with wavy lines “Is this the same child whose lack of find the words to tell us what’s
emanating from “Dad’s” hindquarters. social thinking skills you bemoan? A wrong. We yearn for our child to
mother railed back, “Parents who share speak, s/he struggles heroically
Knee-slappers, right? But would intimate details about their kids online to acquire language, then wants
either of these parents have been are probably the same parents who to talk ceaselessly, but only about
amused if the child shared his/her speak about their child in his or her one thing, be it trains, butterflies,
artwork on the Internet? presence, as if the child isn’t there. One watches, or Pokémon. Yes, it can
day they will wonder why their child drive us to distraction, if we let it.
I’m writing and posting less than lacks empathy!” But if I were a kid who ever read a
I used to because I’ve become acutely
aware of the unforgiving permanence
of the Internet. Am I willing to
forever stand by what I say today in
a fit of snark, ire, or the misguided

8 Autism Asperger’s Digest | February – April 2017

parent’s post declaring to the world parents’ sex life has wrecked my skills we haven’t yet taught them),
how bored to madness s/he was sleep, and they don’t even know it.” most child overshares would
with my conversation, you can bet Unforgettable, true story from pre- be about choices their parents
that “shut up” is exactly what I’d Internet days: a little girl asks her make—getting knee-walking drunk,
do. So much for keeping the lines of mother a rather involved question blowing money, doing stupid stuff
communication open. And I have at bedtime. When Mom says they behind the wheel of a car, saying
to wonder: how often do our kids can talk about it in the morning, cruel things then trying to retract
think the same of adults: “WHEN the girl replies that she wants to with ten-cent apology, dressing
are they going to shut up and give talk about it now because Mom carelessly/tastelessly.
me some peace???” and Dad are often having “those
dumb conversations” behind their Three little words: ponder before
3. “My Mother/Father/In-law/Sister/ closed bedroom door on Saturday posting.
Brother/Ex-partner the Monster.” mornings. Mom says, “What
People change, grow, mature, conversations?” a split second The irony about oversharing is that
evolve. I get so many “seen the light” before realizing she shouldn’t have it negates the very things we try so
letters from anguished relatives asked. “The ones where Daddy gru- hard to teach our children with autism.
of our autism kiddos who say they u-u-nts like a big pig,” mimics the We want them to develop empathy
can’t forgive themselves for what girl, “and you say, ‘Ohhhhhhh, Ed!’” and respect for others, to learn
they didn’t know or realize, and self-regulation and control of their
now, armed with information and 9. How you hate your job but need the impulses and emotions, to come out
understanding of autism, are intent money because autism treatments of their self-focused shell and find that
on reshaping their relationship with the world is not all about me, me, me.
the child. Is your anger or contempt "The irony about oversharing
of the moment worth damaging In her book, Daring Greatly,
possible future relationships with is that it negates the very educator and researcher Brene
people who can play meaningful, Brown writes “Oversharing ... often
lifelong roles in your child’s life? things we try so hard to teach results in disconnection, distrust and
disengagement.” Before hitting that Post
4. You wonder who your child would our children with autism ... to button, ask yourself if you’d be willing
be if s/he didn’t have autism. to share your post aloud to your child
come out of their self-focused now and willing for him to see it ten
5. Anything that begins with “At years from now. What do you hope to get
least ...” At least it’s not cancer. At shell and find that the world out of sharing your bit, and is it worth
least he doesn’t look autistic. At least the possible long-term repercussions?
he has a normal brother. At least is not all about me, me, me." Are the emotions of the moment ones
he doesn’t eat dirt. At least he talks, you’ll stand by tomorrow, next year
sort of. At least your mom will watch are so expensive, or how you hate and forever? Does your motivation for
him once in a blue moon so you can being at home but can’t find decent sharing align with the values and skills
get the heck out of the house. care because your kid is so hard to you’re trying to teach your child?
deal with.
6. Suggesting that you have a favorite ’Nuff said. 
child, whether it’s the one with
autism or that other one. 10. Anything you think is funny but Originally published in Ellen’s newsletter,
wouldn’t if it was directed at you. October 2013
7. One-upping other parents about Would you be willing to be on the
how hard your kid—or spouse or receiving end of your oversharing? Ellen is the author of Ten Things Every
mother-in-law—is to manage. Apply this acid test liberally. Child with Autism Wishes You Knew,
Children grow up—and get on the and three other award-winning books
8. “My child’s sleep problems have Internet. What might your child’s on autism. Her works have been
wrecked my sex life.” Beware, payback look like? While parental published worldwide in more than
beware. When kids get the overshares are often about things twenty languages. She is the mother of
opportunity, they turn this one beyond the child’s control (bodily sons with autism and ADHD.
on its ear, along the lines of “My functions, lack of social-emotional

9www.autismdigest.com | February – April 2017

AN ASPIE’S TIPS FOR TEENS by Jennifer Cook O’Toole

Welcome to the
Great Outdoors

(Adapted from “The Asperkid’s pull of the moon on the tides, the artistic stroke, and generally “manipulate” the
Launch Pad: Home Design that relationship between sea and shore, real sights, sounds, scents, touches,
Empowers Everyday Super Heroes”) or the chain of life evidenced by the and tastes that make up our world.
inhabitants of shells sloshing around From that concrete foundation,
The outdoors is the most developing brains fashion a framework
sensory-filled, great, "With planning and a little for more sophisticated intellectual
wide “somewhere” we and social skills and they retain them
can access, full of gross humor, the outside world because they have seen how they make
motor challenges, never- sense in the REAL world.
ending messes, and stinging bugs. It’s may be the most potent
also usually where the least-structured Spectrum folks have to discover
play occurs. For Asperkids, that means “room” in an Asperkid’s home. these experiences for themselves.
all the tough stuff, like negotiating We cannot do it for them, nor can
changing social scenes, experimenting It’s limitless; it’s free." we lecture it into their fingertips,
with being a leader versus being a boss, vision, or joints. We can, however,
learning how to follow and play along, your feet. Once you wonder, you will give them the tools, repetition, and
and incorporating others’ ideas. be compelled to ask questions of other exposure they need to succeed. As
people. To interact. To communicate. our children (of all ages) are able to
However, only through sensorial ground themselves in the most basic,
exploration and environmental It all begins with the real, concrete elemental, sensorial experiences of
interaction can children develop world to be introduced to our children. all ‒ those that exist in the natural
comfort in their body, in their physical People ‒ by our nature ‒ don’t joyfully world ‒ they can and will move on to
orientation in space, in observable (or successfully) absorb knowledge by more. To wonder and hypothesize. To
natural patterns and order, in the force. Sure, we can use rote memory concentrate and take responsibility.
Earth’s cycles and repetitions, and techniques to help us along, but, if To contribute their own mental
in our environment’s inclination to facts are merely unconnected trivia superpowers to the greater world. First,
control error through predictable bits, they won’t matter much, and they however, we must help our Asperkids
cause-and-effect experiences. certainly won’t be remembered. experience “being” through “doing.”

You have to feel the sand between What we as human beings do best Asperkids need the clarity and
your toes before you can wonder at the is mess around with, poke, turn over, reliability of a lovingly structured

10 Autism Asperger’s Digest | February – April 2017

environment where obstacles "Asperkids crave context. How can outside exploration and work
have been removed and resources be connected with an Asperkid’s natural love of facts?"
thoughtfully provided. Their
emotional security evolves from to go off and just make a mess, are peonies, found-stone walls, cut-
a certainty in their own physical tools available? flower gardens, and waving ferns?
security—especially in the richest
(and thus, most intimidating) of • Make a variety of activities Prepare the Asperkid
sensory environments—the outdoors. possible. When your Asperkid
needs sensory input to get calm, • Be present when you are present.
I once heard that if you ask an can he or she get to a swing, a Ditch the smartphone for a while
adult to sketch out his favorite scooter, a trampoline, a hopper and expect to do more work than
childhood memory, most often ball, some rocks, or a tree to climb? the Asperkid, at least, at first.
those scenes take place outdoors: What about a hammock (with a
catching fireflies, building snow step stool, if needed) for relaxing • Go at your Asperkid’s pace. Aim
forts, snatching at slimy salamanders. movement? How about shoveling for participation, not perfection.
While it may take your supportive, snow, sweeping pathways, mowing A crooked row of lovingly planted
patient encouragement at first, getting the lawn, hammering nails into flowers is far more important than
Asperkids outside can help them feel boards, raking leaves, or pulling the neighborhood garden award.
more connected and less stressed. a long hose for proprioceptive
Their respect for physical labor and (joint and muscle) input; are these • Asperkids crave context. How can
community involvement grows, and things available for your Asperkid? outside exploration and work be
their sleep and cross-curricular, connected with an Asperkid’s
critical thinking skills improve. Best • Digging in sand or soil, carrying natural love of facts? Can you
of all, increased sensory security mulch in a wheelbarrow, or dissect a flower and match its
begets creativity, adventure, and a transferring water all provide the parts with a botanical puzzle?
humbling sense of purpose and awe. heavy work Asperkids need to help Can you prepare a seasonal recipe
overcome sensory defensiveness. from the garden harvest? Can
With planning and a little humor, the child learn to cut and arrange
the outside world may be the most • Walking over uneven surfaces or flowers using some basic tools? Or
potent “room” in an Asperkid’s climbing rocks pushes Asperkids experiment with soil pH and its
home. It’s limitless; it’s free. In every to develop confidence in their effects on flower color?
unexplored nook and cranny, it inspires movement and improves motor
the whispered words, “I wonder ...” planning as they move from one • Make comparative leaf rubbings
surface to another. and then learn about plant cells
Preparing the Space versus animal cells, monocots
• Don’t undersell beauty. Make your versus dicots, annuals versus
• Accessibility—can your Asperkid outdoor space lovely. Life perennials.
safely get outside and be outside is enriched by music and
with some degree of privacy? art. Why not by fragrant • Find out why poison ivy makes us
itch, how various bugs are helpful
• Are properly sized tools (gardening and/or destructive to agriculture,
gloves, rake, clippers, pails, or what minerals are present in the
shovels, compost bin, watering rocks in your yard.
can, and spigot) available and
displayed so that the Asperkid Balancing Choice and
can plan what he or she needs, Responsibility
access whatever is needed, and
then be able to return the tools • Give choice wherever possible
independently? but provide some activity to
engage your Asperkid. Does your
• Is there space for free-for-all
digging? Worm searches? Leaf 11www.autismdigest.com | February – April 2017
hunts? If your Asperkid wants

Asperkid want to help design, hunt. Write ON the actual objects • Take photographs of garden life
purchase supplies for, and/ in chalk and have younger kids and turn them into Bingo, memory
or construct a bean tepee or a find and trace the letters (i.e., games, or even homemade
sunflower garden or a fountain? sandbox, tree, slide). greeting cards.
Should the bendable willow
or dogwood twigs become a • Make a giant hundred board out of • Learn about the life cycles of trees,
sculpture or a trellis? Which kind chalk and jump to solve algebraic frogs, butterflies, or apples.
of birds would he or she prefer to equations or basic skip-counting
attract to the space, and what feed patterns. • Build a potato clock.
will help to do that? Should we
sketch, plan, and build a lookout, • Investigate photosynthesis as you • Mend a fence and paint it. Practice
a stage, or a picnic table? Which dissect leaves. measuring all along; learn to use a
vegetables should we plant? power drill and insert marbles into
• Use a flower press to create gifts for fence posts or gates to catch the
• Try creating mini-settings around family, teachers, and friends. sunlight.
your property that vary in layout,
intent, and exposure, so that your • Have your Asperkid build • Build a bird feeder, bird bath, or
Asperkid can, for example, tend strength and coordination using ladybug house.
to a garden, play with bubbles, a wheelbarrow to haul dirt for the
make homemade chalk, retreat garden, sand for the playground, "Try creating mini-settings
to read in a hammock, or finally, or rocks for the pathway. around your property
gather wildflowers for a dinner
centerpiece. • Practice using a compass while that vary in layout, intent,
investigating the Earth’s magnetic and exposure, so that
• Ask, “What do you want to poles and how they protect us from your Asperkid can, for
explore?” Let your Asperkid direct solar winds.
the experience. example, tend to a garden,
• Observe and draw the phases of play with bubbles, make
Extend the Skills Beyond the moon. Catch and identify the homemade chalk, retreat
animals, plants, and insects in a to read in a hammock, or
the Front Door pond or stream. finally, gather wildflowers
for a dinner centerpiece."
• Make a sundial out of straw and • Experiment with rock salt and figure
clay and practice measuring out why it melts ice in the drive. • Create homemade perfumes and
the angle of the sun using a oils from cut flowers.
protractor, then read about • Top an egg carton with photos of
the history of time-keeping, items to find outside and then go • Sketch constellations as they
calendars, and how ancient for a scavenger hunt! Determine change through the seasons and
deities still show up in modern items to find in the front yard. learn the myths that accompany
month and day names. them.
• Maintain a fish pond.
• Have an outdoor words scavenger • Walk the family pet and observe
• Raise and sell produce or how animals’ “body language”
homemade jams/jellies/fruit or communicates to other animals.
veggie breads at a farmers market.
• Set up an ant farm and bring some
outdoor observations inside.

• Use nature rubbing plates and

12 Autism Asperger’s Digest | February – April 2017

stencils to color and assemble a Think of whirlpools and galaxies,
larger mural. shells and tornadoes. What about
symmetry? Where is it evident in
• Investigate worm anatomy and animals? Insects? Plants?
composting techniques; try
creating your own compost kit, • How did the druids identify parts
then find out about decomposition of trees? How did the Romans
and the chemicals that are released. name parts of flowers? What
powers did ancient peoples
• Construct a swing out of recycled attribute to various types of plant
tire. life or to the changes of season? Do
any of those beliefs affect modern
• Build a miniature garden out of thought?
mosses, pebbles, and dollhouse or
craft supplies. Get as elaborate as • Play in the rain (and find out what
you can! barometric pressure is while
you’re at it)! 
• Plant a butterfly garden and use
guides to identify the visitors. Jennifer Cook O’Toole is an Aspie, is
married to an Aspie, and has three
• Observe a honeycomb. Can you Asperkids of her own! She is the author
figure out why the shape bees of the bestselling Asperkids book series
use is the most perfect of all for and is a prolific public speaker. Jennifer
structural support? (Hint: Try won the 2012 Temple Grandin Award.
building a tessellation!) What other
shapes seem to recur in nature?

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Taking the
First Step

!Go for a

HIKE

Elizabeth Irish, MLS, AHIP

14 Autism Asperger’s Digest | February – April 2017

unxsutawney Phil, that you’re confident in your ability to keep tire when they have to walk. He was
fabulous groundhog who up, this tip may not be for you. For most looking forward to the trip until the
predicts when winter beginning hikers, though, it’s better to brochures came home. One of them
start with a short walk on a relatively had a tick the size of a small dog on
Pis going to end every flat path. It’s hard to avoid tree roots, the cover with a warning to use the
February 2nd, isn’t the rocks, and holes because hiking trails appropriate bug spray, wash as soon as
only one who likes to poke his nose are part of nature. If your child has you got home, and avoid straying from
outside after a long winter. Depending coordination challenges, you may want the trails. The brochure included a list
on where you live, spring is a chance to to avoid paths that are slippery, rocky, of potential tick-borne diseases that
drop heavy winter coats and venture or both. This doesn’t mean you can’t you might develop if you met up with
outside without freezing. Hiking is a build up to more advanced trails, but “Ticky.” As an advanced reader, he read
good way to get the family out in the don’t be overeager your first time out! the whole brochure before we had a
fresh air after being cooped up all Look for a short trail that you can finish chance to prep him. All of the cautions
winter. With some advanced planning, rather than having to give up and turn were correct, but our son, who is now
hiking can be an enjoyable family around halfway. Completing a trail will a teenager, still calls that preserve the
bonding experience. It’s also a good give you a sense of accomplishment. “Tick Capital” of the state. He became
way to get exercise that can be easily Visit the websites for your local, state, so nervous because of that flyer that
adjusted to fitness levels. If you haven’t or national parks to consult their trail getting him to hike was a challenge. He
hiked and are thinking of going beyond maps and descriptions. If you’re still went, but it took him awhile to let down
a neighborhood walk, here are 10 tips not sure, call the park office to see if his guard, even with the appropriate
to get you started on your journey. any of the trails meet your needs. bug spray! Make sure to follow park
directions and use the right bug spray
Tip 1: Location, Location, Tip 2: Don’t Get Bugged Out for the area you’re in, but keep it low
Location key. Avoid scary pamphlets!
Our son’s first hike was a school trip
This recommendation applies to hiking to a local nature preserve in first Speaking of bug spray: Only use
as well as real estate. It may go without grade. The preserve is a popular school what you absolutely have to use. If a
saying, but you probably don’t want trip destination, which is perfect for spray feels terrible on bare legs, then
your first hike to involve climbing up rambunctious six-year-olds who only perhaps a roll-on or dry spray would
steep, rocky terrain on a blazing hot work better.
day. If your child has lots of energy and
is quick on his or her feet, and

15www.autismdigest.com | February – April 2017

Tip 3: Dress for Success "... be cautious about the load in your child’s pack because you

I wouldn’t say I have too many may end up carrying two backpacks instead of just one."
fears, but high on my list is clothes
shopping with our son. He likes one because you may end up carrying two to host a special autism walk. Have that
kind of sneakers that have to be just backpacks instead of just one. on your list to ask when you call about
a bit too big, or else they feel too the types of trails.
tight, but not TOO big that he’ll walk Tip 5: Nature Isn’t Neat
out of them. Pants can be a bit baggy Tip 7: Check for Crowds
but poorly fitting shoes can cause all Wherever you go hiking, it’s best to
sorts of problems. Why am I going remember that nature doesn’t vacuum. Speaking of special programming,
here? I can’t even imagine buying Sometimes, a park may sweep or mow be sure to check the park’s events
him hiking boots. paths, but, generally, you’re going to calendar. The reason can be twofold. A
run across rocks, dirt, and droppings special program on a topic that entices
If you go hiking, before you run out that you may not run across on your your child into the woods may be
and buy hiking clothes, make sure that street. There may be different sounds. presented. On the other hand, a special
the comfort level is adequate. It’s better If you live in the city and are used to event that will draw a crowd of people,
to start on paths that don’t require the sounds of traffic, then the sound which may be over stimulating, might
special boots. You may also want to of a running stream is going to be a be planned. We pulled into a nearby
consider whether or not your child likes different sensory experience. Talk to state park one day to find it filled with
pants or shorts and choose your first your child about what the park is like school buses as there was a cross-
paths appropriately. and show pictures up front from the country meet going on. That might
park’s website. interfere with the normally quiet path
May I say one other word about you’re looking for!
clothes? The layered look is in. Why Tip 6: Don’t Taunt Wildlife
layered? Depending on the time of day, Tip 8: “Pay as You Go” vs.
the temperature might change during I have to say, one of the best posters Park Pass?
the course of your walk. Comfort is I’ve ever seen is one that simply read,
key to minimizing complaints! It’s a “Don’t harass the snakes or bears.” I’m Despite popular opinion, the best
good idea to bring a backpack along to not sure how one would go about things in life aren’t always free. Granted,
keep a light jacket or sweater to put on harassing them, but, rest assured, if I many local parks are free to residents,
if it gets cooler. Extra socks and shoes see one on the trail, the furthest thing but state and national parks often have
are handy too, in case you run across on my mind will be insulting it. I will fees during the peak season. Don’t
puddles. Having a small rain poncho treat it with a great deal of respect! rule out purchasing a season or yearly
that folds up can also be handy in case Fortunately, we haven’t run into any pass if you think you’ll be making
the weather takes an unexpected turn. bears, but we have run into a few rather return trips. This is tricky to gauge
large snakes, turtles, squirrels, deer, because at one time or other we have
Tip 4: Pack Accordingly herons, and eagles. Note: None of these all been enthusiastic and purchased
is your family pet, except perhaps a membership we didn’t use to the
Aside from a change of clothes and snakes and turtles. Before you hit the fullest. However, park passes tend to
bug spray, what else should you carry trails, find out what wildlife you may be reasonably priced. In some cases,
in your backpack? You don’t want to encounter and prepare your child. Let you can even buy a pass to one park as
make it too heavy that it becomes the child know that snakes move fast. If opposed to all parks in a system. For
burdensome, but don’t forget to bring you think the animals might scare your instance, this year we bought a pass to a
along water, snacks, sun screen, and child, you may want to go when more nearby national park, and within three
a small first aid kit, including any people are around or when the animals visits we had recovered our money.
medications that might be needed may be resting. Conversely, if your We went approximately 14 times and
along the way. Don’t forget inhalers child loves animals, find out the best ended up with significant savings. Note
for asthma if needed! If you want to time of day to go. Some parks sponsor that we didn’t buy the pass to go to all
share the load, you can purchase a nature hikes for children that might be national parks, just the one within easy
backpack with a favorite character on it appropriate. They may also be willing driving distance of our home. The fee
for your child to carry. Just be cautious
about the load in your child’s pack

16 Autism Asperger’s Digest | February – April 2017

was reasonable, and we didn’t spend Tip 10: Embrace the Quality the first step, then take a second or a
extra for parks across the country we’d Time third step. Before you know it, you may
never visit. Also, keep in mind that for be hooked. Hiking can be the perfect
state parks, if your child likes to swim, My son is not a hiker or walker at heart. family activity and can be adapted
park passes can be used not only to He’d prefer to talk to me about video to your specific needs. Try taking
access hiking trails but also to access games, records, or computers to being that first step. You may wish you had
beaches. That’s a double savings! outside in the heat or the cold sharing started sooner! 
a walk with bugs. In our case, we find
Tip 9: Visit Your Local Library that shorter walks work best for him. Reference
As we walk, he talks to me about his
Hold on, I know that’s not outdoors! interests. We don’t need to be outside 1. Lau Tzu Quotes, Brainy Quote. Accessed
However, going to the local library to for him to talk to me, but being on a December 1, 2016 from: https://www.
read up on animals, parks, and hiking hiking trail seems to make the talk brainyquote.com/quotes/quotes/l/
can be a great way to prepare before more special and focused. He tends to laotzu137141.html
going on your first walk. In fact, going talk with me as opposed to me. It’s a
to the library first and doing some great time to talk without the regular Elizabeth Irish, MLS, AHIP, is the
research incorporates all the previous distractions. If you listen, you’ll hear Assistant Director for Education and
tips. Want to find out about local trails? more than just nature sounds. Administrative Services at the Schaffer
There’s bound to be a book on that! Want Library of Health Sciences (Albany
a story book on birds? Definitely will Lau Tzu, a Chinese philosopher is Medical College) and an Assistant
be a book! Read with your child before credited with saying, “The journey of a Professor. Her son has a dual diagnosis
the first hike and answer any resulting thousand miles begins with one step.”1 of ASD and Tourette’s.
questions. It will be time well spent. Don’t think of one hike as a thousand
miles; think of it as one step. If you like

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17www.autismdigest.com | February – April 2017

EXECUTIVE FUNCTION

The Chief Executive Officer

of YOU

Cara Koscinski,
MOT, OTR/L

The Pocket
Occupational
Therapist

Ever wonder what controls your
thinking and emotion? Did you
know we each possess our own
chief executive officer (CEO)?
Our amazing brain contains
everything we need to function optimally
and keeps track of past experiences to help
us make better choices. So much information
passes in and out of our brains, but it must
all be organized and regulated. “Executive
function” refers to sets of skills each of us uses
on a daily basis. We decide what we choose to
pay attention to and which activities we engage
in. The term “executive function” defines our
complicated cognitive processing. It involves
several sub-processes to help us achieve each
goal we set. The location of executive processing
is the pre-frontal cortex in the frontal lobe.

18 Autism Asperger’s Digest | February – April 2017

The executive function assists in disorder,” which is characterized by the • Rigidity
deciding what to eat for breakfast and following: • Lack of self-reflection
in planning complicated business
reports. It’s often compared to air • Struggling with schedules This list is not exhaustive but rather a
traffic control at the airport. In fact, • Tardiness good sampling of signs of problems
our executive function also gives • Disorganization in the home and school involving
us information about managing • Forgetfulness, such as forgetting executive function disorder.
emotions and thoughts for efficient
functioning. Also, most people do not what it was the person started The most important thing to
realize that the executive function doing in the middle of a task remember to rectify these problems
also helps us regulate behavior when is that children take cues from others.
difficulties arise and assists in our The second group includes the “doing” Keep calm and create a relaxing
ability to function with maximal skills, such as: environment so your child can control
independence. as many steps of any task as possible.
• Response inhibition Organization, creativity, and patience
I’m often asked for information • Emotional control can help make the task of self-control
about the executive function in • Task initiation much easier. In my book, The Special
individuals with autism. Even as a • Flexibility Needs School Survival Guide (a Future
pediatric occupational therapist, my • Goal-directed activity Horizons Publication for parents,
own children have had difficulties in • The signs of executive function students, therapists, and teachers), I
this area. In fact, when my son was in provide several techniques and tricks
middle school, he had great difficulty disorder are as follows: I’ve learned with my own children
turning his reports in on time. I as well as with my clients. Please let
frequently helped him cram at the last "Keep calm and create a me know if you have any super tips
minute or complete the project so that to share because we are all in this
he didn’t receive a bad grade. Many relaxing environment so your together. 
parents I work with have also bailed
out their child in a pinch. However, child can control as many
when we save them, our children
will not learn the skills required for steps of any task as possible." Cara Koscinski is a long-time pediatric
future competence, and we are, in fact, occupational therapist, speaker, and
enabling them. My words are harsh, • Easily distracted, poor sustained author of The Pocket Occupational
but the truth is that many times we attention Therapist books. She is the mother
lack the knowledge that (a) there is a to two sons with autism. Her books
problem and (b) executive function • Difficulty forming a plan to solve include The Pocket Occupational
difficulties may be present. problems Therapist for Caregivers of Children with
Special Needs and The Special Needs
Where do we start? There are two • Making frequent mistakes, often SCHOOL Survival Guide for Autism,
types of skills: thinking and doing. in the same situation, multiple ADHD, and More! For more information,
Thinking skills include: times visit her website at www.PocketOT.com.

• Planning • Procrastination
• Organization • Disorganization
• Time management • Messy homework, backpack, desk,
• Working memory
• Metacognition (taking a look at work area
• Unable to multi-task
how you are doing and changing • Poor use of time
it or evaluating your own thought • Late with homework, reports,
process)
and projects or procrastinates
This group of skills is more commonly frequently
understood because we often see • Difficulty in generalizing learning
them with “executive function in new or novel situations
• Behavior difficulty and trouble
making a new plan or changing
behavior when it is not working
• Poor frustration tolerance

19www.autismdigest.com | February – April 2017

Get Your Child (with Autism) Out

and Do a Lot of Things!

‘‘Getting Out” Not Only Expands a Child’s Knowledge and
Physical Well-Being, It Also Can Result in Jobs

T emple Grandin realized Joanne Lara, MA, CTC Ed Specialist
that her thinking was
different from others equipped with a good Google search their experiences, and, perhaps, even
when, many years ago, engine. You need to fill it up ...” find a vocation in which they’d excel.

In other words, push the Each of the programs in this
parameters. Don’t let your child article has two distinctive attributes.

she asked someone stay home playing computer games 1) They invite kids and adults on the

to think about a church steeple, at or watching TV because they’re spectrum to visit and experience the

which time she discovered that other intimidated by other environments, outcome of what they produce or do;

people visualize a “vague, generalized, people, or strange animals. Scientific but 2) they also offer jobs to those on

pointy thing.” studies are, more and more, validating the autism spectrum as part of their

“I see only specific steeples I what Temple learned years ago. Get programs to help stop the skyrocketing

have seen in the past; there is no outside and EXPERIENCE, and you unemployment of those on the autism

generalized, pointy thing,” Temple will not only find things you like spectrum. All of them but one are

explained in her book Temple Talks ... and may help your social skills and located in California (although the

about Autism and Sensory Issues. “My knowledge about how vegetables or New York Smiles company has just

concept of a steeple is based on lots of flowers grow, you might also find a recently opened another greenhouse

specific examples I put in a file folder vocation you’d love and be superlative operation in CA). Multiply the

in my mind labeled ‘steeple.’” at doing as work. possibilities of any of these programs

As a result of this basic difference, While vocational programs in public by 49 additional states, and you might

Temple and many others who now are schools used to teach these various begin to make a small dent in the

beginning to understand the autistic experiences in home economics, shop, unemployment problem of those on

brain, advise parents to do whatever and various other programs before No the autism spectrum.

it takes to get their child “out and do Child Left Behind was created, most You might also like to share what

a lot of things. It is important to fill of those programs don’t exist in public great adventures you have in your

the mind with many images they can schools anymore, so it’s imperative own neighborhood with the Autism

look at. Imagine an autistic child’s to get your child on the spectrum to Asperger’s Digest. Let us know at

brain starting as a vast, empty Internet, venture out to fill their senses, expand jonat han@f haut ism.com.

A list of these programs includes:

1. Shemesh 3. Spero Vineyards 5. Special Spirit
2. Smile Farms 4. Danny’s Petting Farm 6. Atypical Place

20 Autism Asperger’s Digest | February – April 2017

SHEMESH ENTERPRISES organization’s social media and
marketing department, and
(www.shalominstitute.com) participate in health and wellness
activities at Shalom Institute,
A Source with Soul and Season which include hiking, meditation,
with Purpose! basketball, social skills building,
yoga, and visiting the farm animals,
Shemesh Enterprises is a social among others.
enterprise that empowers and develops
independence for young adults The products of their work—
with “different abilities” through primarily produce, herbs, and baked
employment, internships, and social goods—are sold by the Farm Fellows
connections. The jobs program is the in Los Angeles’ area farmers markets,
centerpiece of the overall enterprise, at community organizations, as well
which is housed on 220 acres in the as at Shalom Institute’s community
mountains of Malibu, five miles from events. Shemesh Farm stands are
the Pacific. The Shalom Institute is also staffed by the Farm Fellows.
based on expansive facilities, with Farm stand profits support Shemesh
programs that serve more than 25,000 Enterprises and its continued growth.
people annually in camp, special
activities, and jobs. “We believe that being out in
nature is therapeutic for people of
“Shemesh” translates from Hebrew
into “Sun,” which, quite literally, is the "We have established a tone at Shemesh that is warm and
essence of the Shemesh Organic Farm, welcoming, but also professional, forward thinking, innovative,
Shalom Institute’s summer overnight
camp for children, which includes and, overall, a very cool vibe."
those with developmental disabilities,
their community events, bakery, and all abilities,” says Michele Cait, director although some work at other jobs in
the enormous undertaking they’ve of Shemesh Enterprises. “We created addition to Shemesh. When they turn
created since Shemesh Enterprises’ Shemesh Enterprises in part so that 26, they are still able to be employees
inception in 2012. adults with developmental disabilities of Shemesh because, like other
would have the opportunity to work in companies, employees continue to
The vision for the Shemesh Farm a camp/farm environment with trees, grow with the company, as has been
Fellows’ program came from Bill plants, and animals that would not only the case with the Shemesh Fellows.
Kaplan, who visited Israel on a Jewish give them a paycheck but also enhance
Federation of Greater Los Angeles their well-being. We have witnessed the Major funding and support come
mission to see how Israel provided positive impact of this environment on from a $200,000 Cutting Edge Grant
for adults with developmental our Farm Fellows. We have established in 2015 from the Jewish Community
disabilities, with farming and its a tone at Shemesh that is warm and Foundation of Los Angeles. The
products offering jobs. welcoming, but also professional, program was piloted in 2014 with
forward thinking, innovative, and, a generous grant from the Jewish
Not only is Shalom Institute a overall, a very cool vibe.” Federation of Greater Los Angeles,
retreat center and camp that includes private donations, and revenue
those on the autism spectrum and “Everyone who either visits our from the farmers market sales, with
other youth with disabilities, it Farm and Garden or is a patron at additional funding from the Jewish
employs 34 adults with developmental our markets wants to be part of our Federation Valley Alliance. The Jewish
disabilities on its farm. The program is magical, vibrant, working community,” Federation continues to fund Shemesh
not, however, a residential program for adds Cait. Enterprises annually.
the “Farm Fellows” (the workers).
Founded in 2012, all the original Shemesh plans to launch its
The Farm Fellows come to work Fellows still work for Shemesh, Shemesh Farm products online soon
in Shalom Institute’s Shemesh
Organic Farm and Garden, bake in
the Shemesh Bakery, work in the

21www.autismdigest.com | February – April 2017

so patrons can purchase from all over Shemesh ‘Farm Fellow’ Neal SMILE FARMS
the country. That will also open up Katz Feels Connected to God
new employment opportunities for the (www.smilefarms.org)
Fellows in shipping, packaging, media, Fellow Neal Katz says he’s a ‘simple guy’
and technology. and challenges others to contemplate They Built a Greenhouse That
his world. Changed Everything
“Presently we are honing in on our
Culinary Table Salt and Pink Pepper “I work at camp J C A shalom in Fifteen years ago, Jim McCann, founder,
line and are expanding our fresh dried Malibu. I water trees, plants, and herbs chief executive officer, and chairman of
herbs and spices that are also sourced in their organic garden. I pick ripe 1-800-flowers.com, and Chris McCann,
from our garden and handcrafted by lemons, oranges, and olives. I use hay president of 1-800-flowers.com, built a
our Fellows,” explains Cait. to insulate the trees in the winter. It greenhouse, which may seem like an
makes me happy to work. ordinary task for someone in the flower
The slogan for those products business, but it was far from it.
is “Source with Soul and Season with “I feel connected to God when I am
Purpose.” working in nature. I see God’s work It was a special greenhouse for
in the earth and want to feel it in my developmentally disabled adults to
The farm also makes garden stones, hands. When I am in the garden and give them an opportunity to become
organic lip balms, and various other working, I feel God’s call, and I answer an intricate part of their community
products for sale from their “green,” him by doing the work he started. through jobs provided in a safe,
eco-friendly environment. When God was creating the earth, He nurturing location for socialization
created plants on the third day. I am and productivity.
The farm director is Davis Watson, continuing God’s work when working
who oversees gardens and animals, at J C A. It all started with a phone call from
but subscribes to a policy of allowing the group home in Moriches, NY, where
the Fellows to take frequent breaks “Everyone says I am a simple guy Jim and Chris’ brother Kevin live. The
to visit the animals and undertake and, really, I am. I wish everyone was home was having difficulty finding
other activities regularly. Fellow Jacob as simple as I am. The world would be local jobs for all of its residents and was
Artson explains: a much less complicated place if we all hoping the McCanns could leverage
tried to do God’s work and not the work their business relationships to help
I have learned from Shemesh that we convince ourselves we ought to do. with such placement.
I can succeed at anything I set my
mind to and that if I keep working “When watering trees, I think about Knowing firsthand the importance
hard I can become better even at the giving back to the earth what she gives of integrating developmentally
things that are most difficult for me. to me and to the earth. disabled adults into a community
Thank you to everyone at Shemesh structure and a little something about
for helping me to learn these import- “Earth is like a giant circle. flowers, Jim and Chris sprang into
ant lessons! “It’s a give and take; however, not action and personally funded a year-
enough people give. round greenhouse operation to create
In addition to Shemesh Enterprises, “This year I challenge everyone to those jobs.
Shalom Institute also has about 40 give more to Earth’s giant circle and
autism spectrum disorders (ASD) take less. Be more aligned with God’s From its peaceful nook on
children who come to Camp JCA vision and see how much you grow as the east end of Long Island, the
Shalom (www.campjcashalom.com), a result.”
an overnight camp (for children ages 7
to 17) for summer and winter camp and
seasonal weekend retreats.

Neal Katz is employed at Shemesh Enterprises in Camp JCA Shalom.

22 Autism Asperger’s Digest | February – April 2017

Flower Barn was born. It quickly and live. More importantly, they are invites everyone “to work side-by-
became an enrichment epicenter for passionate about delivering smiles. side to grow vegetables,” which are
developmentally disabled adults who raised “pesticide free.” Smile Farms’
age out of traditional educational So, at the beginning of 2014, the “Community Bridge Builders” supports
programs at 21 years old. McCann family created “Smile Farms,” their adults with developmental
a non-profit organization dedicated to disabilities to become contributing
Since 2001, year after year, Kevin supporting developmentally disabled members of their community through
and his housemates have grown adults by building fully operational, their farm, which harvests vegetables
flowers and plants that are sold to local self-sustaining greenhouses that to go to members who have paid in
florists and communities, providing provide meaningful work, social advance for a share of the harvest
them with a steady salary, lasting social interaction, and immersion in the (similar to a coop). Produce is delivered
ties, and an unmistakable sense of communities in which they work to members in Modesto and Turlock
pride. The families of these newfound across the country. who have ordered a season of vegetables.
gardeners quickly saw positive changes
in their demeanor. On September 18, 2015, the Flower SPERO VINEYARDS
Barn transitioned into a Smile Farms,
It became clear to everyone that which has the goal of partnering with (www.sperovineyards.org)
the Flower Barn was filling a huge gap citizens, corporations, and government Spero’s Viticulture Vocational
entities to fund and create an additional Training is Located in “the Napa
"The McCann family five farms over the next five years, of Southern California”
spreading smiles one job at a time.
believes that, as citizens, Spero Vineyards offers student tours
Smile Farms employs 35 farmers, 30 of its vineyards by reservation, so
neighbors, co-workers, of whom are developmentally disabled it offers an opportunity for schools
adults in the Independent Group Home and students to get out and learn
and friends, they should Living facility. As of its official opening about vineyards, but the company’s
in September 2015, the farm had 17 primary program is its Viticulture
make a difference in greenhouses, a mum field that doubles Vocational Training program, which
as a pumpkin patch in the fall, and a
the communities in micro-green growing house. The Smile seeks to tackle the growing challenges
Farm wears the proud label of “All- of unemployment among adults with
which they work and live. American Grown.” disabilities by offering a solution to
one of the most significant barriers in
More importantly, they Volunteers are welcome and agricultural production—matching
fund-raising events are planned when highly trained and dedicated workers
are passionate about visitors can enjoy the greenhouses filled with employers who need their
with mums, handing baskets, annual service. Mark Woodsmall, co-founder
delivering smiles." and perennial flowering plants, palms, of Spero Vineyards, explains the
papaya, ferns, dracaenas, microgreens,
in social services for these important and more! Visitors also have the
members of our communities. opportunity to speak to the farmers
and see how passionate they are about
As word spread of the Barn’s success, their jobs. Some of their responsibilities
Jim and Chris started getting calls include mixing soil, potting plants,
from families across the country about cleaning the area, helping customers,
expanding and assisting the group art projects, maintenance of the
homes in their respective areas. The greenhouses, and watering plants. It is
seed was planted; brainstorming began the perfect way for visitors to see how
and the concept of partnering their much the farmers enjoy working while
business with this humanitarian cause earning their own paycheck.
took shape.
Smile Farms recently expanded
The McCann family believes that, into Turlock, CA with a three-acre
as citizens, neighbors, co-workers, and community farm, which hires adults
friends, they should make a difference with developmental disabilities and
in the communities in which they work

23www.autismdigest.com | February – April 2017

"Students in the program receive instruction in the history and culture of the wine country, viticulture
science, hospitality, business marketing, and various ... agricultural aspects of the winemaking business."

goal, which is “to grow our resources of the wine country, viticulture science, areas such as retail (Jolly Jumps, Vons,
to support the education and hospitality, business marketing, and TJ Maxx), personal business
advancement of 200 Global Citizens and various theoretical and hands- (Super Clean Home Services), City
by 2019, in which young adults on agricultural aspects of the of Temecula internships (Human
with developmental disabilities are winemaking business. Services, Mary Phillips Senior Center,
welcomed into this program.” and Information Technology), County
The classroom sessions and the of Riverside-Department of Education,
The program currently serves 12 to vineyard experiences are interactive Spero Vineyards, and the Department
14 students in a class that runs for an and hands-on to stimulate and engage of Rehabilitation.
annual growing season. The students students. Versatile job skills that apply
are not paid while they train, but they to a variety of environments are taught Currently, the project has 1380
also do not pay for the training, which with a high return on relevance. The vines of cabernet, zinfandel, and
many working institutions require. goal is to train a highly specialized tempranillo under cultivation, with
workforce capable of delivering a plans to expand the vineyard by an
Young trainees earn a vocational quality end product. additional 2,000 vines.
certificate in viticulture (the
science, production, and study of Of the 36 students the company has Spero Vineyards’ Viticulture
grapes) and food handling and worked with thus far, more than 50% Vocational Program is a unique
customer service certificates at the has secured full/part-time employment public-private partnership among
completion of their program with or internship opportunities. project organizers and vineyard
the Temecula-based winery. owners, Mark and Eva Woodsmall, the
In the first two cohorts of 10 City of Temecula, and the Temecula
Students in the program receive students each, 12 gained employment Valley Winegrowers Association. Spero
instruction in the history and culture after completion of the program in

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MERISTEM builds the foundation for a productive life
by helping to optimize the potential of each individual.

Through the three-year residential and day program,
MERISTEM serves young adults with ASD by helping
them develop practical life skills, increase social
capacity, and transition to work and independence.

MERISTEM’s flagship center is located on a beautiful
13-acre campus near the American River in Sacramento.

We invite you to visit today. For more information
please visit www.meristem.pro or call 916 963 1000

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24 Autism Asperger’s Digest | February – April 2017



"On a number of occasions, thing. On a number of occasions, non- experience, contact the Farm Manager
verbal participants visit, and the beauty at (909) 896-7741. For donor relations,
non-verbal participants visit, of interacting with animals is that volunteers, or to schedule a visit,
words are not necessary. Many times, call (626) 632-0826 or visit http://
and the beauty of interacting visitors are fearful of the animals, but dannysfarm.org.
gentle guidance and starting with
with animals is that words smaller animals, such as bunnies, Animals & Health
causes the fear to dissipate and the
are not necessary." comfort to increase.” Studies have shown that animals
provide numerous health benefits
While Danny’s Farm is open to the “It has been a heartwarming to people and, in particular, reduce
public, it provides specific outreach to adventure on many levels. Seeing a anxiety and provide social support.
the special needs community, thanks community wrap its arms around a http://center4research.org/healthy-
to the generosity of its donors. In cause that benefits so many is at the living-prevention/pets-and-health-the-
addition, it has a “mobile petting farm” top of the list. Touching the lives of its impact-of-companion-animals/
that serves the neediest of children, participants is at the top as well.”
those too disabled to travel to the farm. One study shows that the introduction
Over the past 10 years, Danny’s of pets can improve prosocial behavior
Jim and Cathy Gott created the Farm has attracted thousands in children with ASD. https://www.
facility because “Danny always had a of visitors. Regular field trips are ncbi.nlm.nih.gov/pmc/articles/
tremendous affinity for animals, and scheduled to several school districts PMC3411605/pdf/pone.0041739.pdf
we were thinking of healthy ways that and special day classes, and Danny’s
Danny could work and thrive as an Farm can be seen at numerous Autism Farm animals are being used as part
adult,” says Cathy. Their facility may Awareness events throughout the Los of a therapeutic strategy to improve
well be the precursor of a movement Angeles area. social-emotional outcomes for people
that has taken hold in the last five years, with ASD. http://modernfarmer.
which involves parents and siblings Founding Farmer Danny Gott com/2014/02/animal-therapy-autism.
creating businesses specifically to hire says that “working at Danny’s Farm
those with ASD because they are aware is a great experience for me. I have an SPECIAL SPIRIT RANCH
of how difficult employment is for them, information booth and welcome all
even though many young adults with the kids to the farm as well as answer (www.specialspirit.org)
autism are talented and eager to work. questions about the animals. I hope
everyone will come by and have fun An All-Inclusive, Equine
“It is a joy to watch the magic and learn about animals.” Therapeutic Center Where
unfold at Danny’s Farm,” says Cathy. Children and Adults Become
“Witnessing our expert staff guide a Visit Danny’s Farm at Cal Poly Empowered
visitor through the farm is a beautiful Pomona on most Saturdays. Admission
is $4.00. To schedule a Mobile Farm In addition to being an outdoor and
physical activity, horseback riding
Danny Gott and Alec Baldwin, fundraiser helps with building gross and fine
motor skills and also strengthens core
26 Autism Asperger’s Digest | February – April 2017 and leg muscles. The movements of
the horse under the riders make them
increasingly aware of the location of
their body in relation to the horse. The
riders also must remain engaged at all
times to stay balanced.

Riding is fun and exciting, and it
encourages riders to talk to instructors,
volunteers, and, above all, the horses.
Several of the non-verbal kids start

talking by asking the horse to move approximately 1,000+ riding lessons D., & Gehman, M. (2009). Volitional
forward. Most of our kids are receiving per year. Older riders are offered the change in children with autism:
a variety of therapeutic services. What opportunity to volunteer. A single-case design study of the
sets riding apart is that it does not impact of hippotherapy on motivation.
All lessons are 45 to 50 minutes, Occupational Therapy in Mental Health,
which includes grooming and tending 25(2), 192-200.
to the horse as well as riding. Most
parents like the young kids to ride in ATYPICAL PLACE
groups because they can socialize, and
it also gives parents a chance to talk (www.atypicalplace.org)
and exchange information about the
program and their children. School Children and Special
Needs Education
Funds for the program come from
parents, who pay $55 for a single Atypical Place hosts educational
lesson or $45 a lesson if they sign programs for local schools and
up for a session of eight rides. The organizations interested in farm-
program also offers scholarships, based learning at Trabia Farms near
pending funds availability. The Templeton on California’s central coast.
It provides farm tours to support school
"By working with the horse and interacting with volunteers programs that educate approximately
and other riders, the riders’ self-confidence and sense of 300 children about where their food
competence soars ..." comes from and how to develop
healthier eating habits.
feel like “therapy”; instead, it is an program is underwritten with grants
enjoyable, outdoor activity and engages from the Lakers Youth Foundation, A 501(c)(3) nonprofit organization,
all the senses of the rider concurrently. Neighborhood Council, Weingart, Atypical Place is dedicated to providing
Capital Group, Aidan’s Red Envelop, All farm-based learning for adults and
“Most of our first-timers may Glory, and individual donors. children with cognitive and other
have tantrums, scream, and cry developmental disabilities using
when they come,” says founder Eva Animals & Therapy a “holistic approach so everyone
Lund. “However, once on their horse, learns from one another,” says Dr.
these behaviors generally stop. The Articles on the bond between human Elizabeth Burton, corporate secretary
movement of the horse is very soothing and animals that may contribute to OT and spokesperson for Atypical
and calming.” release and oxytocin mediated effects: Place. The staff’s goal is to provide
educational and vocational training
“Some kids have to come to the barn Beetz, A., Uvnäs-Moberg, K., Julius, H., that will lead to job opportunities,
several times before their senses adapt & Kotrschal, K. (2012). Psychosocial build self-confidence, and increase
to new smells, noise, etc., because and Psychophysiological Effects of independence. While gaining skills,
many of our kids are very sensitive Human-Animal Interactions: The the program participants create
to change, so we work slowly and Possible Role of Oxytocin. Frontiers products that allow them to give back
methodically to get them used to this in Psychology, 3, 234. http://doi. to their communities.
new environment.” org/10.3389/fpsyg.2012.00234
Atypical Place features unique
“By working with the horse and The study provides preliminary evidence outdoor places at Trabia Farms
interacting with volunteers and other that improved volition may be an for sensory exploration. In the
riders, the riders’ self-confidence and important and under-recognized benefit Exploratorium, program participants
sense of competence soars,” adds Lund. of hippotherapy for children with autism: can hide in the playhouse, create music
on the outdoor harmony park musical
At Special Spirit, the owners believe Taylor, R. R., Kielhofner, G., Smith, instruments, discover buried treasure
that all kids are special, regardless C., Butler, S., Cahill, S. M., Ciukaj, M. at the Fossil Whale dig site, sit quietly
of their “diffabilities.” They have
between 35 and 42 weekly riders, with

27www.autismdigest.com | February – April 2017

"The participants give back to their communities by donating the products they create—vegetables to
local food banks, along with herb sachets and flower bouquets to local hospitals, convalescent homes,

and fundraisers for other nonprofits."

watching over the butterfly garden, fundraisers for other nonprofits. They and Atypical Place is expecting
listen to birds singing, play on the swings, also give back to each other as program approximately 10 more to obtain paid
navigate the plant maze and wobbly graduates become volunteers for the jobs this year.
bridge, or just enjoy the views while next generation.
strolling along the ADA nature trails. Atypical Place works with
The volunteers—both “typical” volunteers from local school
Using organic, sustainable and special needs kids and adults— districts in San Luis Obispo County,
practices, Trabia Farms grows olive help out with the programs, doing public agencies, local colleges, and
community organizations to create
mutually beneficial partnerships to
serve program participants. It also
provides seeds to special education
classes so they can raise their own
pumpkin plants, transplant them in
spring to the farm, and harvest their
pumpkins in the fall. 

trees to produce award-winning extra setup or cleanup or helping the Joanne is the founder of Autism
virgin olive oils. Fruits and vegetables, participants. Approximately 40 special Movement Therapy and was the
flowers, and herbs grow in and around needs participants were promoted recipient of two Autism Speaks
the Rainbow Garden to support the “A to be volunteers in Atypical Place’s grants. She is also core adjunct
Place to Grow” and “A Place to Bloom” third program year. A few were able faculty at National University in Los
programs. Trabia Farms also is home to to advance into paid work in 2016, Angeles. Joanne is the Executive
barnyard animals—horses, miniature Director of Autism Works Now!
donkeys, chickens, and farm cats— (www.autismworksnow. org).
which participate in the “Barn Buddies” For AMT Certification, licensing,
animal therapy programs. and online courses, visit www.
autismmovementtherapy.org.
Participants in Atypical Place
programs learn how to care for the
animals, plants, and land. They gain
basic agricultural skills, social skills,
and self-confidence with sensory and
motor development and relationship
building. The participants give back
to their communities by donating
the products they create—vegetables
to local food banks, along with herb
sachets and flower bouquets to local
hospitals, convalescent homes, and

28 Autism Asperger’s Digest | February – April 2017

new products: DiscJam
A lex Dassise has a younger brother, Stefan Seiji
Dassise, who was diagnosed with autism around lessons” tied into the DiscJam “game.” He and his partner Spen-
the age of two. Among other things, he was cer Kleweno , who in majoring in finance at Oregon State Uni-
non-verbal. versity as well as writing a thesis on social mobility, have already
“As he (Seiji) developed, he learned to type on come up with about nine games that can be played in a 20 to
a computer and write, but, basically, he needed a substantial 40 minute time span (with exercise and/or movement, which is
amount of help. It was frustrating that I really couldn’t commu- definitely part of the definition!)
nicate with my own brother, practically at all,” explains Alex.
Parents, teachers, or health professionals can modify the
Because Seiji (pronounced “say-G”) liked physical activities DiscJam with a child’s favorite music (from Bluetooth) and/or
as well as music, Alex had an Eureka moment when he was toss- select from a library of various lesson plans and games, all in-
ing around a Frisbee one day. If he could create a Frisbee-like corporated through the USB port on the DiscJam.
disk and attach something for sound, he could create something
that could play music Seiji liked and incorporate a program that Alex exudes enthusiasm as he talks about the DiscJam. “It’s
not only required “turn-taking” (if you added directions during actually like being one on one, engaged in conversation with my
the music), it could become a mechanism for the give-and-take brother.”
of “conversation.”
What can be better than that?
The first time they used Alex’s invention of the “DiscJam”—a Seiji actually participated in a talent show last year, where
disk with a hump on its top that can be thrown back and forth he sang and danced to the music from the DiscJam in front of an
based on verbal directions—Alex and Seiji were able to laugh, audience. His demeanor has totally changed—definitely show-
dance, and play in a whole new way, like never before. ing a confidence he hadn’t had before—and his language has
become more articulate as a result of all the singing he practices
“The ‘conversation’ and the music became ‘fun,’” Alex ex- while playing.
plained. The DiscJam became Seiji’s “bridge” for social interac- Is that worth the $65 price tag?
tion. It not only gave him an engaging, fun experience, he began It would seem so.
to feel more confident around peers and others. If you’re interested in their now-growing array of programs
and products, Alex and Spencer’s company is named Seiji’s
The game opened up all sorts of other opportunities, because Bridge, which can be found at http://discjamz.com. Drs. Tony
you can have a back-and-forth game of citing your favorite an- Attwood and Jed Baker have endorsed this product. 
imals or, in the case
of Stefan—if he can’t
articulate the name
the animal—he can
make the animal
noise. The game
because an engage-
ment in conversation,
with other back-
and-forth exchang-
es wrapped around
favorite schools, fa-
vorite places, or a
whole host of other
programs Alex has
been rolling out with
DiscJam.

Alex, who is ma-
joring in entrepre-
neurship at Oregon
State University, is
excited about build-
ing a “big library of

29www.autismdigest.com | February – April 2017

THE ART A SHOWCASE FOR THE WRITING
OF ADULTS WITH AUTISM

OF AUTISM
by Alix Generous with Keri Bowers

The Art of Relationships Communication is the basis of all relationships,
but where it gets tricky is when much of what
people intend or mean is unsaid or relayed
through nonverbal communication and body
language. This is difficult for autistic people
who have difficulty reading facial expressions, body language
and intonation. It has taken years of practice for me to improve
these skills. I still work on them.
I’ve always had a need to connect with others. I speak from
experience in having Autism Spectrum Disorder when I say
that relationships with friends have helped keep me sane. I
am not emotionally close to my family. The lack of consistent,
positive role models while growing up was something I had
to find outside of my family. The basis of comparison came
from the meaningful friendships I’ve forged through the years;
those that helped me stay strong through periods of loneliness
—especially as a child.

Back then, my speech was impacted by a lisp when
saying words with th, sh, z, and s’ in them. Struggling with
speech made me highly susceptible to bullying—especially
throughout middle school. The boys especially, called me
terrible names and committed unspeakable actions. I was
a sensitive child filled with compassion and empathy, so I
never fought back. Instead, I responded with kindness, often
offering to give them a hug instead of my anger. In the 7th
grade I once calmly asked a boy if the awful things he called
me brought him true internal happiness. Dumb-founded and
then laughing, he said “of course!” I was amazed that someone
so young could feel so much malice. Yet I only felt compassion
and empathy for him.

It was harder when bullying became physical. A boy once
tried to forcibly make out with me. When I responded by
slapping him, he called me a curse-word. That was the first

30 Autism Asperger’s Digest | February – April 2017

time bullying really got to me. As a changed for the better when, after trial they practiced. This helped with
girl with autism, I found it easier to and error, I found the right school. perspective and insights to my
withdraw and suppress my pain. Yet in My therapist told me to observe how relationships and as I grew closer to
not dealing my emotions and sadness, people interacted before I joined the others, my social skills improved.
it came out at the worst possible conversation. Modeling other girls’
times. Sensory meltdowns occurred behaviors is what I did. But eventually I Post Treatment
due to this overstimulation, with my would need residential treatment. This
reactions becoming more severe when was where major growth occurred. I Relationships
I was bullied. It became a cycle of attended 48 hours of therapy each week,
pain that erupted as something else including individual, group, family After graduating before my sophomore
seemingly unconnected. and speech therapy, and my favorite, year of high school, I attended a small
equine therapy. college preparatory boarding school.
Growing up with undiagnosed Doing well in classes was important
autism made all my relationships, I think during the teenage years, to me, and I got B’s and A’s. Though
including those with my family people’s awareness levels change making friends was never a problem
incredibly difficult. There was little dramatically based on everyday tasks, for me, I was naturally competitive,
patience when I needed it most. I was an interactions and interventions. For me, so I gravitated towards two girls who
outsider, ignored by my older brothers, intense therapy helped me relate better were better in school than me. We
considering myself mentally alone. to others. I saw that no matter how put became best friends while practicing
together others may seem, everyone good academic habits together. It’s
My Refuge
"I believe the most important aspect of relationships is
There were those who stood by me reciprocity. This is not naturally easy for autistic people, yet
during those difficult years. I had successful relationships are a two-way street. I know it is hard
four close friends: two guys and two for autistics to naturally connect with others on many levels, so
girls in my grade with whom I shared it is important to take risks even when it is scary. Role playing,
my unique talents. I once taught one observing and modeling others’ behaviors, and practicing
to swim, and sewed a renaissance
costume for another. I genuinely cared communication skills is essential."
for them, and continue to this day to
share successes, happy feelings, and has difficult mountains they need to important to be with people who add
experiences with them. climb. When people open up to share positivity to your life and keep you
secrets and pain with others, a bond accountable to goals and vice versa.
I also found comfort for pain and forms that cannot be undone. I learned
anxiety in magical relationships with that when we struggle with our pain From a young age, as a die-hard
animals. I liked to think my cat, who alone, we are likely to gravitate toward romantic, I believed an unconditional
slept above my head, protected my unhealthy habits, people and places. soulful love between people could
mind from damage. When I cried, During treatment, I drifted in and out change the world. I still believe this
she would lick my toes or sit on my of different kinds of friendships based love exists. I knew I wouldn’t find it
lap. I remember wishing humans on how I was changing. in my teens, but that didn’t stop me
didn’t speak and interacted more like from wanting to date and experience
animals. In retrospect, I know that In reading a lot of books and relationships with boys. My first
was a horrible idea. Finding comfort scientific studies (a keen interest), I romantic experience happened in band
in animals is good, but as humans, learned that that healthy relationships camp at Berklee College of Music. My
communication with other people is a develop from strong friendships. I breasts grew a cup-size and I mastered
part of everyday life. I began to learn would ask people in successful new skills in music—and both raised
this through therapy. long-term relationships what kept my confidence. I was trying new
them together and what habits things even though they scared me. I
Treatment

When I was 12, an educational
consultant worked to find better
treatment for me. Relationships

31www.autismdigest.com | February – April 2017

dyed & cut my hair the way I always Keri Bowers Change (COP19). Alix has worked
wanted to. I embraced many of my with neuroscience researchers at the
strange interests while surrounded by “Generous in spirit” is how I would Medical University of South Carolina,
others who loved similar things. It was describe the aptly named Alix Tufts University School of Medicine,
easier to meet people through classes Generous. Alix graduated last month and the University of Vermont on
and connecting with them through from the University of Vermont with a autism, traumatic brain injuries,
common interests. bachelors of science in neuroscience. epilepsy, and pain. Her company,
Not uncommon—especially for girls, Generous & CO, develops media that
I met my current boyfriend in 2008 Alix was misdiagnosed for years helps children overcome adversity and
at Berklee. Together we rode horses until the pieces finally fell together will be launching this July.
and played music. We were friends with an eventual diagnosis of Autism
for 5 years before starting to date in Spectrum Disorder. Her TED Talk “My Inner Life …” has
2013 when I interned at Tufts Medical received over 1.4 million views. With
School. He does not have autism or At 19, Alix won first place in a one resulting TED Talk and two TEDx
other developmental disabilities, but nationwide competition for her Talks now under her belt, Alix is one to
has an uncanny compassion towards research paper on quorum sensing watch for innovative supports and ideas
others who think differently. Our and coral reefs. Her paper titled to building accepting environments for
common interests, lack of fear towards “Environmental Threats on the all kinds of minds. Watch Alix’s TED
having close relationships, and the Symbiotic Relationship of Coral Talk “How I Learned to Communicate
ability to maintain open and honest Reefs and Quorum Sensing,” was My Inner Life” on TED: https://www.
communication has sustained us. published in Consilience: a sustainable ted.com/talks/alix_generous_how_i_
development journal published by learned_to_communicate_my_inner_
It turned out that finding refuge in Columbia University. In 2013, she was life_with_asperger_s.
the arts and sciences, and being open a youth delegate with SustainUS at the
to meeting like-minded people was the United Nation’s Convention of Climate
gateway to making good choices as an
adult about relationships. The most important teacher
in your child’s life is YOU!
I believe the most important aspect
of relationships is reciprocity. This is • Has your child recently been diagnosed?
not naturally easy for autistic people, • Is your child on a waitlist for ABA therapy?
yet successful relationships are a two- • Are you making accommodations for your
way street. I know it is hard for autistics
to naturally connect with others on child to keep him or her happy?
many levels, so it is important to
take risks even when it is scary. Role If you answer “Yes” to any of the statements
playing, observing and modeling above, CONSIDER TAKING A TWO-DAY intensive
others’ behaviors, and practicing
communication skills is essential. Applied Behavior Analysis (ABA) class,
Hopefully, along the way, we find
people we trust who can help challenge WHICH WILL SAVE YOU A
us to grow these skills.  GREAT DEAL OF MONEY!

Keri Bowers has worked in the DON’T WASTE ANY MORE TIME!
disabilities field for over 25 years. She
is a mother, advocate, speaker, and A two-day intensive class will teach you
filmmaker. Keri co-founded The Art of about ABA, save you money, allow you to
Autism (www.the-art-of-autism.com), see a manageable path to help your child
and is the owner of Normal Films. Her
films include Normal People Scare Me, because you’ve been proactive about
The Sandwich Kid, and ARTS. Her work learning about ABA therapy.
has been featured all over television.
Contact [email protected] or
www.parents1st.com.

32 Autism Asperger’s Digest | February – April 2017

new products: Focus Desk
F or years, psychologists and teachers have recog-
nized that children with learning differences like agreed that standing desks could be created for classrooms as a
ADHD, autism, and dyslexia need to have “move- means to deal with the fidgeting problem but possibly, also, to
ment breaks” during the school day. These breaks boost test scores, battle obesity, and improve student engage-
were seen as opportunities to release the pressure ment. Their highest priority in the design was to allow children to
of nervous energy that made it difficult for these children “to be- be in control of their movement without having to ask for teacher
have appropriately” (generally defined as “sitting still”). assistance or disrupting the class.

Rather than sending the child out of the classroom, it oc- The Focus Desk was the result of the collaboration. It can
curred to at least one special needs mother, Nancy Dellamore, easily and silently be raised or lowered by students—no tools re-
that the better approach would be a way to accommodate a stu- quired—with the touch of a patent-pending FeatherTouchTM lift
dent’s desire for movement that would allow self-regulation and mechanism. The Focus Desk also includes teacher-recommend-
minimize classroom disruption. Every child feels the need to ed design features for organization, such as integrated hanging
stretch occasionally, so a classroom environment that teaches all folders, separate interior shelves for books and electronic devic-
children how to move in a non-disruptive way would be support- es, backpack hooks, and drop-leaf worktop extensions that can
ive of not only the special needs child but of all students. be raised or lowered as necessary.

New research supports that position with special needs chil- To allow teachers to easily rearrange seating groups, the en-
dren because it shows that fidgeting and squirming by children tire desk rolls on smooth, durable casters. The Focus Desk even
with learning differences actually reflects a coping mechanism has customized “privacy panels” that can set up in moments for
that enhances the child’s focus (2014 study, the University of test-taking or quiet study and then folded into the built-in holder
Central Florida, in which results show that children with ADHD for storage.
can better access their working memory when they have sensory
feedback from movement). “Using the desk, the students are able to meet all their sensory
needs to remain focused. It creates independence as they remain
As a result, Nancy Dellamore suggested and helped define engaged in instructional tasks,” says Mark Frenzel, Principal of
standing desks through her work with The Marvel Group, which the Creekside School in Fairport, New York. “It’s easy to use so
students can manipulate it themselves. When they need to stand,
they stand; when they need to sit, they sit.”

Since its introduction for elementary students in early 2015
with teachers and students at the Hyde Park Day Schools in Chi-
cago and Northfield, Illinois, teachers have reported that it has
led to increased engagement, focus, and productivity.

A recent pilot study found students who used desks that ac-
commodated standing definitely helped combat sedentary be-
haviors, but additional studies are recommended to evaluate
neurocognitive improvement in executive function and working
memory because the Texas A&M study was based on a limited
number of students (34).

The Marvel Group has just announced an expansion of the
standing desk into the older high school population with an ap-
propriately larger desk.

To view The Marvel Focus Desk in action, visit www.marvel
focusdesk.com/video.html. 

The Marvel Focus Desk, a new movement-friendly student desk enables K-12 Reference
students to sit or stand at will. In addition, the Focus Desk incorporates a
host of unique design features that promote organization, concentration, and Ranjana K. Mehta, Ashley E. Shortz,and Mark E. Benden, Department
workspace flexibility. of Environmental and Occupational Health, Texas A&M School of
Public Health, TAMU, College Station, TX 77843-1266; “Standing Up for
Learning: A Pilot Investigation on the Neurocognitive Benefits of Stand-
Biased School Desks,” International Journal of Environmental Research
and Public Health. 22 December 2015.

33www.autismdigest.com | February – April 2017

What Every Parent
Needs To Know
Before Their
Autistic Child
Gets
Anesthesia

Anita Lesko,
BSN, RN,
MS, CRNA

“I will be presenting at the United Nations for World Autism Awareness
Day [April 2], speaking about employment, relationships, and marriage.”

—Anita Lesko

34 Autism Asperger’s Digest | February – April 2017

arents need to be aware motor skills, fine motor skills, any reason. Nitrous oxide
of the risk of anesthesia cognitive function, and overall can have deleterious effects
for any child on the neurologic deterioration. In on overall oxidative stress
some ASD individuals, skill and homocysteine levels;
P autism spectrum who is loss may be permanent
scheduled for procedures 3. Prior to the day of the procedure,
that require anesthesia—such as 3. Excessive fatigue and reduced request that your child is the
MRI’s, endoscopies, tonsillectomies, energy levels: temporary (for days first appointment of the day.
adenoidectomies, ear tube or weeks) or permanent There are several reason for
placement, and any other procedures this, but for this purpose it’s to
that requires even a modest use 4. Possible death minimize length of fasting;
of anesthesia. Anesthesia team
members, such as anesthesiologists Measures That Can Be 4. Ask the anesthesia providers to
and Certified Registered Nurse avoid using Lactated Ringer’s as
Anesthetists, need to be made Taken to Minimize These the IV fluid since it contains lactic
aware of these issues with a child acid and ASD individuals with
on the autism spectrum prior to any Risks mitochondrial dysfunction have
procedure with anesthesia. elevated lactate levels;
Even for healthy individuals there
The reason for concern are risks associated with getting 5. Avoid, if possible, succinylcholine
actually affects only a subgroup of anesthesia. Even with caution, there for muscle relaxation.
individuals with autism spectrum are no guarantees that the outcome
disorder (ASD) who has abnormal will be free of complications. There In conclusion, if these simple
mitochondrial energy production are measures that can be taken to precautions are followed, there is far
and function that contributes to their minimize dangers. less chance of a bad outcome. 
physical, cognitive, and behavioral
impairments. The presence of Whenever a parent’s child is References
mitochondrial dysfunction increases scheduled for surgery or a procedure
the risk for potential damage to that requires anesthesia, the parent ht t p://w w w.medscape.com/v iewa r t icle/
the brain, which is dependent on can advocate for their child with the 808453
oxidative metabolism. Research anesthesia providers. They might
shows that individuals with the meet some resistance, as typically ht t p://w w w.medscape.com/v iewa r t icle/
mitochondrial dysfunction have health care providers don’t like to 808453_4
specific defects in the mitochondrial be told what to do. However, if done
oxidative phosphorylation. This risk with tact, the parent should be able ht t p://w w w.epidem ica nswers.org/w p-
is increased during procedures that to convince the Nurse Anesthetist or content/uploads/2010/05/Anesthesia-Risk-
require general anesthesia. anesthesiologist to listen to the facts in-ASD.pdf
presented and make the necessary
Unfortunately, people with changes to help prevent deleterious ht t p://w w w.m itoact ion.org/fi les/R isk%20
this disorder are clinically effects. There are no costs involved, of%20Anesthesia%20Regression%20(2).pdf
indistinguishable from others without just simple changes that anyone
it, so it’s wise to treat all ASD patients can do to save the ASD patient from ht t ps://w w w.aut ism.com/pro_a nest hesia
as if they have it. catastrophic events.
Anita was diagnosed with Asperger’s
The following complications What a Parent Can Do at the age of 50. She is a Certified
may occur in ASD patients with Registered Nurse Anesthetist,
mitochondrial dysfunction following 1. Discuss that the patient has specializing in anesthesia for
anesthesia: ASD and may possibly have neurosurgery. Anita founded Born
mitochondrial dysfunction. (The With Asperger’s, an educational help
1. Excessive time to wake up after present article may be used as site for people with Asperger’s. She
anesthesia collaborating research.) contributed to the Temple Grandin
book Different ... Not Less and will
2. Developmental regressions, which 2. Ask that the anesthesia provider have a new book published by Future
could include loss of expressive NOT use nitrous oxide for Horizons in Fall 2017.
and/or receptive language, gross
35www.autismdigest.com | February – April 2017

the

DIGEST Book Corner

by Lyn Dunsavage Young

The Chicken Who Saved The Out-of-Sync Child Autism Adulthood:
Us: The Remarkable Story Grows Up: Coping with Strategies and Insights for
of Andrew and Frightful Sensory Processing a Fulfilling Life
by Kristin Jarvis Adams Disorder in the Adolescent by Susan Senator
and Young Adult Years
Yes, Andrew is autistic, so by Carol Stock Kranowitz Speaking of conversations, Susan
he does a few “weird” things, like make Senator’s are riveting and best
friends with a chicken named Frightful, Well-known because The Out-of-Sync described by her opening sentence in
which he zips up in his jacket (with her Child is considered “the parents’ bible Autism Adulthood:
beak hanging out so her eyes won’t be to sensory processing dysfunction”
damaged) so he can ride madly down (New York Times), Carol Stock The other day I had a vulnerable
the street with the wind blowing through Kranowitz, MA, has plunged into a moment where I let myself imagine
both his red hair and her feathers. He subject that few have written about: The End. If you’re reading this, you
has intimate talks with Frightful, telling what can be done about the teen and know what I am referring to: the
her that his body is literally killing him, young adult with SPD. Ironically, moment when I would no longer be
saying he feels like knives are cutting because most young children aren’t here for my autistic son, Nat. I don’t
through his stomach. Frightful clucks correctly diagnosed with SPD, as they like to talk about it. No one does.
understandingly and stalks the house, grow older, they actually “grow into But we parents will only learn from
obviously worried about Andrew as his —not out of—SPD, always wondering each other if we talk about autism
health continues to deteriorate every what is ‘wrong’ with them that hinders adulthood and what to do for our
year. This is not so strange if you have their full and functional participation children in the long run.
a dog or cat or if you’re a scientist who’s in life,” states Kranowitz. Her newest
studied how significant the human/ book, The Out-of-Sync Child Grows Up So, there I am, lying down in a
animal bond is in aiding children and has a refreshing twist to it because bed with old, thinning white hair
adults with disabilities. This book is she not only offers tips on how to and bony hands ... And there is Nat
much more than a true story about a sick deal with your individual brand of hovering nearby ... Each time he
child and his relationship with a chicken. SPD, she goes to the “real authorities,” looks over at me, he says, “Mommy
It’s a mother’s search for understanding, those adolescents and adults who’ve will wake up.” But, of course, I can’t.
survival, and divinity. It’s a “can’t put struggled through their teens and adult
this book down” as, page after page, years and subsequently found ways to This is a conversational book for
you picture how each member of the deal with their plight. It’s a little like a everyone who has a child with
family, often humorously, handles the great conversation with several people autism, and it’s a MUST read because
fear and helplessness to save Andrew as who really know how you feel because Senator deals with what I’d call one
doctors search repeatedly for a long-shot they’ve been through it. They, literally, of the worst of times: the period when
possibility to cure his extremely rare and can tell you how they survived or the reality that 80% of those on the
disease. You can’t get through this book overcame SPD. It’s a great conversation, autism spectrum can’t ever get jobs
without laughing and crying because at the least. (particularly if they are limited verbally
the author captures both emotions in or intellectually). Parents’ darkest fear
her family’s roller-coaster ride to the becomes palpable. What can we do
end. You should read it because it’s a to fashion a life that is manageable,
story about the joy and meaning of life, hopefully fulfilling, and, prayer-upon-
which the author captures so well it may prayer, at least somewhat self-sufficient
change yours. so our child can survive? She draws on
her own story, but she also searches

36 Autism Asperger’s Digest | February – April 2017

behind so many others’ personal the pictures and words take priority.
stories to try to find the paths through This is a great small book that shows
the post-high school abyss. Some are you not only how to hook a child into
systematic ways to evaluate everything reading, but also provide the joy that
from living accommodations to will guide children through books
caregivers, but others might appear throughout their lives.
seemingly far-fetched, like creating or
finding a business to match your child’s Teaching Math to
capabilities—until you get what she’s People with Down
learned: Do whatever it takes to get Syndrome and Other
your teen or young adult balanced on Hands-on Learners:
the slippery steppingstones so he or she Strategies and
can make it successfully to the other Materials, 2nd Edition
side to fulfillment. by DeAnna Horstmeier,
PhD
Whole Child Reading:
A Quick-Start Guide to Packed with 150 activities, games,
Teaching Students with and worksheets that appeal to visual
Down Syndrome and Other learners, Teaching Math ... is written by a
Developmental Delays veteran educator with special expertise
by Natalie Hale in assisting parents and educators with
strategies for students with special
First, this is a book broader than needs. The activities are relevant to
Down syndrome children. It’s for daily living because they are concrete
anyone with developmental delays. and practical. It covers pre-number
Second, it’s written by an educator concepts, recognition and writing of
who has provided a quick guide to numbers, money, fractions, counting,
help beginning or struggling readers time and measurement, addition,
(whatever their age!) because it’s based subtraction, multiplication and division,
on central tenets that anyone can follow. and the use of a calculator. Teachers and
The pivotal idea is to “go in through the parents will love it because the pages
heart” by identifying the interests of are created to be copied! Dr. Horstmeier
the child and creating personal books is a former instructor of special
written about a learner’s absolutely education, as well as speech, language,
“most favorite things in life.” You create and communication.
them yourself, along with flash cards
for all words not yet mastered by the Lyn received the Sigma Delta Chi
child. If the child loves pets, that’s your and Dallas Press Club Lifetime
subject. If she is addicted to iPads, that Achievement Award as the Publisher of
becomes the topic to “awake” the child the Dallas Downtown News. She also
to the joy of reading. Add pictures on received the Southwest WICI Award
the topic and pictures of the learner as one (of three) top journalists in
in the picture of the topic, and you’ll Texas. She presently works for Future
essentially hook him into reading Horizons as its media coordinator.
happily. Ms. Hale illustrates in the book
how you can create these materials, 37www.autismdigest.com | February – April 2017
which also have to be designed for the
brain. For example, the large font size
is critical for a young child’s brain to
register it. White space is important, so

resources: camps Contact Lyn Dunsavage Young: [email protected] or 800•489•0727

Asperger’s, High-functioning ASD, LD, ADHD Autism Asperger’s ADD/HD LD

Summer Camp Charis Hills is
Co-ed Ages 6-22 a Christian
recreational and
• Variety of programs educational
• Build confidence summer camp
• Problem solve for children with
• Make friends learning and
• Gain responsibility social
difÞculties. Our
828-697-6313 campers
64 Gap Creek Rd., Zirconia, NC 28790 discover a highly personalized, fun-Þlled and
nurturing environment while Þlling their heartÕs
[email protected] • www.talismancamps.com desire to be accepted and succeed in new
activities.


 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 WWW.CHARISHILLS.ORG

Life with Mr. MTM by Angie DeMuro

38 Autism Asperger’s Digest | February – April 2017

Coming for Autism
Awareness Month!

GET THE SECRET
OF THEIR SUCCESS

Born with autism, both Temple Grandin
and Sean Barron now live famously successful
lives. However, their paths were quite differ-
ent. Temple’s logical mind controlled her so-
cial behavior. Logic informed her decision to
obey social rules and avoid unpleasant con-
sequences. Sean’s emotions controlled his
social behavior. Baffled by social rules and
isolated, he made up his own rules, and ap-
plied them to others. When they broke his
rules, he felt unloved.

Both Temple and Sean came to terms with the
social world and found their places in it. Whether you are a
person with autism, a caregiver, or just someone interested in an outsider
view of society, their powerful stories will enlighten you.

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40 Autism Asperger’s Digest | February – April 2017