CRDN A5 Event_Flyer 27th_Feb_CFH_v07

Cambridge camraredisease.org
International Rare #CRDN2017
Disease Summit
An exciting opportunity
Monday 23rd October 2017 for those in the rare

Robinson College, Cambridge disease community to
come together
Anchored by powerful patient voices, this one-day
conference will explore: The summit will
also feature
Rare disease patient journeys from symptoms
through to treatment a patient journey
Empowering patient revolution poster gallery
Data mining and management
Pharma 'adopting' a rare disease
Drug re-purposing

Who should attend Hear from those leading camraredisease.org
the way in rare #CRDN2017
A key event in the rare disease
calendar, the Cambridge International diseases, including: Dr Ségolène Aymé
Rare Disease summit brings together Medical geneticist,
academia, healthcare, industry, business, Founder of Orphanet
patient support groups and more. It is a chance and Chair of the Topic
to build the future of rare diseases and establish Advisory Group on rare
best practice in research, treatment and care. diseases at the World
Health Organization
Learn more about the rare disease community
Dr Ana Mingorance
W hat can Cambridge contribute to global Scientific Advisor to
efforts in rare disease research? the Dravet Syndrome
European Federation
W ho’s leading the way in collaborative, and independent
innovative research, treatment consultant in CNS
and care for those with rare diseases? and orphan drug
development
H ow can we put patients and their families
at the centre of all discussions? Dr Kate Bushby
Professor of
Neuromuscular
Genetics at Newcastle
University John Walton
Centre for Muscular
Dystrophy Research and
a Founding Coordinator
of TREAT-NMD

Corporate sponsorship opportunities Tickets now on sale

Find out how your organisation can support the CRDN. Please purchase through
For further details contact: our Universe page by visiting
our website:
Jo Balfour Kay Parkinson
Conference & Events Director Chief Executive Officer camraredisease.org
E: [email protected] E: [email protected]
Tiered pricing, with discount tickets
for patient support groups and
students, is available