ALS newsletter_Fall 2018_FINAL

FALL 2018

NEWS

Thank You, Phillies! Phillies stars Nick Williams and Vince Velasquez share a happy
moment with Brad Frith and his family at the 2018 Phillies Phestival.
What a way to start the summer! This
June, on the official first day of summer, the To enjoy photos of this year’s event, visit
Philadelphia Phillies held their annual Phillies alsphiladelphia.org.
Phestival, raising $725,050 to Strike Out ALS. Since
1984, the Phillies organization and their fans have
raised over $18 million for the ALS cause.
Over 4,000 fans were on hand for this year’s event to
get autographs and pictures with the Phillies stars of
today and legends from the 1993 team as well.
“This may be the first Phillies Phestival for many
players, fans, and ALS families, but it continues a three-
decade commitment by the Phillies organization to do
everything in their power to Strike Out ALS,” says
Ellyn C. Phillips, President of The ALS Association
Greater Philadelphia Chapter.

The ALS Association Greater Philadelphia Chapter and the Phillies thank everyone
for their support, including Grand Slam Sponsor Kessler Topaz Meltzer & Check, LLP,
All-Star Sponsor NBC Sports Philadelphia, Grab Bag Sponsor Hatfield Quality Meats,
and Home Run sponsors In Memory of Anne and Ron Krancer, Jefferson Weinberg ALS Center,

Macy’s, Mitsubishi Tanabe Pharma America, and UFCW Local 1776.

My First Phestival By Gary Williams

I have always been a Phillies fan, yet even years just signed some baseballs and taken pictures and I
would have been thrilled.
of hearing about what the Phillies do for the ALS Instead, they truly gave their time and attention. The
cause couldn’t have prepared me for my first Phillies baseball season is long and the team has very few
days off, but nobody rushed me or any of the other
Phestival! people with ALS at the event. They made me feel
At this year’s Phillies like I wasn’t just a fan, but that I was a part of their
Phestival, I had the organization. That is because the fight against ALS is
pleasure of meeting at the heart of the Phillies character.
many of the players, Thank you, Phillies, for making my first Phestival a day
as well as Phillies I will never forget.
leadership and team
staff. They could have

Gary Williams (front and center)
and Sue Liano enjoy time with
Phillies players Jake Arrieta and
Rhys Hoskins.

Board of Directors Greetings from Marta Rubin Kiesling,
Executive Director
Chair
Christina G. Martin “Alone we can do so
little, together we can
Vice Chair do so much.”
Dale Shimer
These wise words by the indomitable Helen
Secretary Keller resonate as I reflect on the progress
Sandra L. Piersol within our Chapter and the ALS community.
Together our advocacy efforts have resulted
Treasurer in a new milestone. In June, we learned that
Larry Mink the voice you have given to the urgency of this
Assistant Treasurer cause has resulted in more than $1 million in
Julie Strong Karnavas combined funding this year for ALS care and
President services from the states of Pennsylvania, New
Ellyn C. Phillips Jersey, and Delaware. Never before have we
Chair Emeritus crested $1 million—an outcome that simply couldn’t have happened
Benjamin S. Ohrenstein, Esq. without the compelling and meaningful stories you continue to share
Executive Director through your letters and visits with lawmakers.
Marta Rubin Kiesling Together, our fundraising efforts have enabled scientists to find another
new ALS gene. Labeled KIF5A, the gene, discovered in March, may help
Our Mission researchers target better ALS treatments. KIF5A is the fifth new gene
discovery since the Ice Bucket Challenge. A social media phenomenon,
To discover treatments and the Ice Bucket Challenge is the most well-known and iconic example of
a cure for ALS, and to serve, how a motivated and committed group of people can impact progress.
advocate for, and empower Our efforts to build a strong and supportive community have resulted
people affected by ALS to in a vibrant network of helping professionals, clinicians, and volunteers
live their lives to the fullest. who use an extraordinary set of Chapter services to empower people
impacted by ALS. These services not only enable patients to maintain
FOLLOW US! their dignity and highest level of independence, but help to reduce the
@alsphiladelphia financial burden amassed by this devastating disease.
Let’s keep this incredible momentum going! Get involved, support
Chapter events, become a community or corporate partner, share your
stories, and encourage others to do the same.
Helen Keller’s conviction that there’s power in numbers is right. Together
we’re a force to be reckoned with—a dynamic battalion of friends,
families, caregivers, advocates, medical professionals, researchers,
volunteers, and supporters who are poised to free the world of ALS.

Forever until a cure,

Marta

A Legacy of Kindness self-pity. He often thought about those who
are left to battle ALS without the kind of
Scott DeWire sadly lost his strong, supportive community that helped
life to ALS in February, but his him cope with the rigors of this disease.
legacy of kindness and generosity In the spirit of Scott’s thoughtfulness and
concern for others, his gift will help the
will live on through a gift of $750,000 he Greater Philadelphia Chapter bolster
bequeathed to the Greater Philadelphia imperatives that help to advance ALS
Chapter. research, care, and advocacy.
A global traveler and outdoor enthusiast, The Chapter celebrated Scott’s life with a
Scott’s lifestyle was active and rewarding. special ceremony attended by caregivers,
In 2011, a feeling of weakness in his legs family, and friends and has honored his
began to interrupt his busy life. Then, later legacy by establishing a fund that bears his name. We
that same year, Scott was diagnosed with will forever remember this remarkable man whose
ALS, forcing him to retire from his long and generosity will help to uplift and empower many people
distinguished career as a chemical engineer. who live with ALS.
Scott persevered with ALS for seven years, and
throughout that time never lost his smile or gave into

Research Update

Rate of ALS Gene Discovery Highest in ALS History
Thanks to Ice Bucket Challenge

Before the 2014 ALS Ice Bucket Challenge, helped lead the collaboration. Over 200 authors and nine
The ALS Association allocated $6 million ALS consortia, including many of the consortia supported
annually to fund ALS research. Since the IBC, through ALS Ice Bucket Challenge donations, contributed
The ALS Association has been able to increase to the discovery.
the annual research budget by approximately “It was truly a pleasure to see the collaborative effort
200%, to total about $18 million per year. of so many groups coming together to help with our
This significant boost in research dollars has goal of identifying a novel ALS gene,” said Dr. Landers.
led to the highest rate of gene discovery in “It demonstrates that any single group may be able to
ALS history. In just the last four years, five new make significant findings on its own but together we can
genes that contribute to the development of accomplish boundless advances.”
ALS have been found: KIF5A, NEK1, C21orf2,
TUBA4A, and TBK1.
Ultimately, every new ALS gene that is found
gives researchers a promising new target
for drug development. The new genes
also provide insight into the many interactive pathways
explaining motor neuron degeneration, which is the
underlying cause of ALS.
Most notably, the recent gene finding in March 2018,
KIF5A, constituted the largest genetic study of ALS
ever undertaken. A massive collaboration of researchers
compared over 10 million gene variants between 20,806
people with ALS and 59,804 control samples.
Dr. John Landers from the University of Massachusetts
Medical School and head of the U.S. arm of Project MinE,

Pennsylvania

The ALS Association Awards Designation as a Certified Treatment Center of
Premier Certification to Excellence is a pivotal milestone in the partnership
Jefferson Weinberg ALS Center between the Greater Philadelphia Chapter and the
Jefferson Weinberg ALS Center. With experts who
This spring, the Jefferson Weinberg ALS Center of understand the rigors of this disease, Jefferson helps
the Vickie & Jack Farber Institute for Neuroscience sustain the Chapter’s work through support of major
at Thomas Jefferson University Hospital was awarded events that raise funds for ALS research, care, and
designation as a Certified Treatment Center of advocacy. In turn, the Chapter provides ongoing financial
Excellence by The ALS Association. The Jefferson support and personnel resources for the ALS Center.
Weinberg ALS Center is one of only three facilities “We are pleased to receive this recognition from The
in Pennsylvania that has earned this prestigious ALS Association and to continue our partnership with the
certification, and the only one in the immediate Greater Philadelphia Chapter to support our ALS patients
Philadelphia region. and their families. Starting this Center, our goal was to
create a forward-thinking and compassionate program
As an ALS Association Certified Treatment Center to help patients live productive lives with ALS now, while
of Excellence (CTCE), the Jefferson Weinberg ALS also connecting them to research efforts for a better
Center has met rigorous standards for both clinical care future,” says Dr. Piera Pasinelli, Director of the Jefferson
and research. The ALS Association only awards this Weinberg ALS Center.
distinction if an ALS Center provides comprehensive,
multidisciplinary care, conducts groundbreaking ALS
research, engages in ongoing best practices, and
promotes an environment that emphasizes hope
and quality of life. Additionally, CTCE certification
signifies that the Greater Philadelphia Chapter and the
Jefferson Weinberg ALS Center maintain a collaborative
relationship to ensure that essential home- and
community-based services are accessible to patients.

Sweet Success in Hershey If you would like to participate on the 2019 Hershey
Walk Committee, please contact Carla Patton at
Thank you to all of the fabulous walk teams and sponsors [email protected] or 215-664-4145.
who, so far, have helped raise over $209,000 at the 2018
Hershey Walk to Defeat ALS®. We’re now 94% of the way TOP FUNDRAISING TEAMS
to reaching our targeted amount. You can still make a 1. Team Sherry
contribution at HersheyWalktoDefeatALS.org to help us
meet—or exceed—the goal! And, be sure to enjoy our 2. Best Care Anywhere
Hershey Walk photo album at alsphiladelphia.org. 3. Kelley Krusaders
Susan Walsh, Director of Clinical Services in South Central
PA for the Greater Philadelphia Chapter and captain TOP INDIVIDUAL FUNDRAISERS
for the Hershey Clinic Best Care Anywhere walk team, 1. Sherry Wisor
has walked for many years. Her sentiments about the 2. Jeanette Beck
Walk experience speak for many: “It’s such an amazing 3. Darla Lupfer
experience to be among hundreds of caring people who
answer to the urgency of this cause by walking to raise
money that supports ALS research and care.”
Many thanks to all of our teams, walkers, sponsors,
and volunteers!

Big Successes for Lawmakers and ALS advocates celebrate a proclamation naming May
Pennsylvania Advocacy ALS Awareness Month in PA. From left to right: State Representatives
Becky Corbin and Mike Turzai; Greater Philadelphia Chapter Director
This spring, ALS advocates went above and beyond to of Public Policy Tony Heyl; Maureen Reid, RN, BSN; Brad and Marti Bert;
make an impact for ALS issues in Pennsylvania. After State Representative Bryan Cutler.
nearly 100 visits with elected officials in Harrisburg, the
Pennsylvania legislature and Governor Tom Wolf agreed representatives to make a personal case for fully funding
on a budget that included $750,000 for ALS care ALS research and ending the Social Security Disability
services, a 50% increase over last year. Insurance five-month waiting period for people with ALS.
Stories from ALS families compel lawmakers to
acknowledge our urgent mission. In May, the PA House To add your voice to ALS Advocacy, visit
and Senate made an official proclamation for ALS alsphiladelphia.org.
Awareness Month—a tradition they have continued for
nearly a decade.
Dozens of Pennsylvania families and caregivers also took
their stories to Washington, D.C. for The ALS Association’s
National Advocacy Day in May. There they met with
Senator Pat Toomey, representatives from the office
of Senator Bob Casey, and 23 offices of congressional

In the Race to End ALS, Going for Coach Curry’s 456th Win!

Cos feels impassioned to educate people about ALS,
as well as raise funds to support families impacted by
the disease now and in the future. “Our biggest hope is
that Coach Curry’s 456th win can be a cure for ALS. Until
then, we walk to support those living with the disease.”
You can continue to support the Berwick walk teams
online at BerwickWalktoDefeatALS.org and enjoy
photos of the Berwick Walk at alsphiladelphia.org.
Additionally, if you would like to participate in the 2019
Berwick Walk Committee, please contact Carla Patton at
[email protected] or 215-664-4145.

This year, the Berwick Walk to Defeat ALS® brought TOP FUNDRAISING TEAMS
together hundreds of people to raise money for ALS 1. First Keystone Community Bank
research and care.
Berwick Walk Committee Chair Cos Curry points to his 2. Curry Strong
father, George Curry, a beloved high school football 3. Alley Medical Center
coach who lost his life to ALS, as an inspiration that
keeps Cos firmly rooted in the cause. “My father passed TOP INDIVIDUAL FUNDRAISERS
away in the spring of 2016 from ALS. Our family would 1. Mary Beth Tomczak
like to not only remember his spirit, tenacity, and fight 2. Tony Ruggiero
for life, but also to raise awareness of the disease that 3. Albert Alley
ultimately brought an ‘early retirement’ to my father,
who, at age 71, still had so much to give.”

New Jersey

New Jersey ALS Center multidisciplinary care that integrates the best available
Receives Coveted ALSA clinical evidence with compassionate care.
Recognition “To have earned this designation in just two years
since starting the ALS Center speaks to the incredible
In late 2017, the ALS Center at Hackensack Meridian commitment and standard of care practiced by our
Health Jersey Shore University Medical Center was entire team, which is comprised of experts in the areas
awarded designation as a Recognized Treatment of neurology, physical therapy, occupational therapy,
Center by The ALS Association. Jersey Shore University respiratory therapy, nursing, dietary, speech language
Medical Center is one of only two hospitals in New pathology, social work, and mental health,” says Mary
Jersey that has earned this prestigious designation. Sedarous, MD, a board-certified neurologist and medical
director of the ALS Center at Jersey Shore University
To become an ALS Association Recognized Treatment Medical Center.
Center, the ALS Center at Jersey Shore University
Medical Center elected to undergo a thorough
evaluation of its delivery of care and attention to best
practices, as well as the quality and extent of the
support it offers to patients and families.

During the evaluation, Jersey Shore University Medical
Center demonstrated that it met The ALS Association’s
exacting clinical care and treatment standards. These
standards, which are based on the American Academy
of Neurology’s Practice Parameters, emphasize

A Day of Fun & Sun During Seaside Walk

If you want to find out more about joining the
2019 Seaside Walk Committee, please contact
Taylor Montgomery at [email protected]
or 215-664-4143.

Many thanks to our Walk committee, the Lakewood
BlueClaws, and all of our teams, walkers, sponsors,
and volunteers!

Our Seaside Walk teams had an uplifting day on the TOP FUNDRAISING TEAMS
boardwalk during the 2018 Seaside Walk to Defeat 1. The Johnny Walkers
ALS®. Hundreds of people participated, raising 2. Carlson’s Roughriders
more than $58,000 dollars. This amount is almost 3. Eliot’s Gang
97% toward our goal!
TOP INDIVIDUAL FUNDRAISERS
You can still help our walkers meet or 1. Suzanne Haag
exceed the goal by donating online at 2. Fran Carlson
SeasideWalktoDefeatALS.org. And, be sure 3. Irwin Dunsky
to check out photos of the Seaside Walk at
alsphiladelphia.org.

Additionally, there are great opportunities to get
involved in the planning of next year’s Walk!

New Jersey Advocates Make TOP FUNDRAISING TEAMS
a Difference 1. Rose Pedals
2. Barry’s Bikers
For many years, ALS advocates like New Jersey resident John
Russo have testified in favor of funding ALS care services in 3. Kramer’s Krew
the Garden State.
Thanks to the efforts of John and many others, in 2017 TOP INDIVIDUAL FUNDRAISERS
the state allocated funding for the first time. This year, after 1. Carlos Duarte
many advocacy meetings in Trenton and across the state, 2. Barry Schultz
New Jersey again approved $250,000 in funding for ALS 3. John Florio
care services.
This funding allows The ALS Association to expand services
such as in-home care, provision of medical equipment, and
resource groups.
On the national level, New Jersey advocates shared their
story with every member of Congress from the state and
successfully persuaded Senators Booker and Menendez to
co-sponsor legislation to end the Social Security Disability
Insurance five-month waiting period for people with ALS.

Pedaling For a Purpose

For nearly 20 years, thousands of riders have contributed to
the ALS cause through the Ride to Defeat ALS. This year,
riders have so far helped raise more than $116,000.
There are several traditions that distinguish the Ride to
Defeat ALS, with perhaps the most beloved being the
ever-popular end point celebration at Morey’s Piers and
Water Parks. Since losing their dear mother to ALS, owners
Will and Jack Morey have a special place in their heart for
families impacted by this devastating disease and feel a
particular sense of fulfillment in rewarding riders with a fun
day at their amusement and water parks.
One event participant captured most riders’ sentiments in just
four words, “Great event; great time!” Be sure to see our 2018
Ride to Defeat ALS pictures, which captured all the fun, at
alsphiladelphia.org.
The Greater Philadelphia Chapter is deeply grateful to Will and
Jack Morey, Team Captain/Mentor Marcia Telthorster, and all
of the riders, supporters, sponsors, and volunteers who have
contributed to the success of the 2018 Ride Defeat to ALS.
You can still donate to the Ride by visiting
GPRidetoDefeatALS.org. Additionally, if you’d like to
get involved in the 2019 Ride Committee, please contact
Lauren Doberstein at [email protected] or
215-664-4176.

Delaware

A Big Year for Advocacy From left to right: The Greater Philadelphia Chapter Public Policy
Director Tony Heyl, Adam Czerwinski, Craig Colby, Katie Wilken, John
This year marks the 10th anniversary of Wilken, State Senator Brian Bushweller, Mary Ann Wollter, Bill O’Brien,
the Rehoboth Beach Walk to Defeat Mary Lou Wollter Anicola, Linda Darr, John Darr, State Representative
ALS®. To commemorate this special milestone, Jeff Spiegelman, and the Greater Philadelphia Chapter Director of
Annual Giving Donna Cleary.
the Delaware legislature, led by State Senator Brian
Bushweller and State Representative Jeff Spiegelman, State Representative Joe
passed a concurrent resolution recognizing ALS Miro and the Joint Finance
Awareness Month and honoring Walk founder Mary Ann Committee approved a 58%
Wollter and her daughter Mary Lou for their decade of increase in funding for the ALS
action to fight ALS. Grant-in-Aid, making sure that
more Delaware families can
Craig and Kristen Colby of New Castle shared their story access vital care programs.
with federal lawmakers during the Greater Philadelphia
Chapter ALS Advocacy Day on May 15th. They have
developed strong relationships with Senators Tom Carper
and Chris Coons, who have been vocal champions for
ALS research funding. (Pictured bottom right corner.)

“The Rehoboth Beach Walk to Defeat ALS® is one of
the most positive and inspiring days of the year. It
means so much to see my family and friends rallying
by my side and to see such a strong community come
together for this cause.” – John Darr, top fundraising
team, 2017 Rehoboth Beach Walk to Defeat ALS®.

In Memoriam
January 1-July 31, 2018

The Chapter lovingly remembers Board Member Wes Rose (seated Martin Kelly Nancy Ransom
center), a dedicated advocate in the fight to end ALS and revered Robert Killough Mark Ream
spokesperson who worked tirelessly to advance the mission of The Leanne Kirk Terry Reese
ALS Association. Ludmila Klynowski Patrick Reilly
Daniel Kopec Elizabeth Reyes-Guadelupe
Vernon Adams Fred Dodd Jeffrey Kramer Alice Rick
Joseph Altieri Doris Doheny Alfreda Kurtich Wes Rose
Elizabeth Arentz Karen Engle Dennis Lawler Scott Rossin
Philip Avillo Patrick Ezeamaka Eugene Leff John Rothschild
Vera Baird Heidi Ferrigno Kyan Leong Dorothy Ruane
Kum Baker Scott Fetters Hazel Lindsay Nancy Russell
Lawrence Barcosky Gardenia Garcia Manuel Lopez Michael Salmon
Constance Barreto Robert Gerber Philip Luckenbaugh Mary Santana
Carol Bartlett Evelyn Gillette Catherine Ludwig Enrique Santiago
Mary Baumbach Mariah Gladis Valer Lukianov Virginia Schneeman
Helen Becker Bertha Glatz Jean Maida Leo Schumm
Eston Becker III Sheila Green John Malandrino Kimberly Simon
Ellen Begun Donald Grove Denise Mallet Marcella Snyder
Vivian Bianco Stanley Gwiazda AnnaMarie Malloy Richard Sommer
June Bierman Robert Haines MaryAnn Marczyk Daniel Sprigle
George Bilyou Nancy Hamilton Anthony Marhan William Stanton
Michael Brown George Hannon Esther Martin Daniel Stunkard
Maria Brown Joseph Hardy Paul Martino Paul Sylvester
Joy Carducci Fred Hargrove Antonietta Mastrocola Julie Taylor
Charlotte Chasteen Lonnie Hawke James Mattson Barbara Teets
Charles Clark Earl Hendershot Martha McClendon James Thomas
Champ Clark Timothy Hill Patrick McDermott Suzanne Trainor
Linda Cody Paul Holler Kathleen McGuigan Duynang Tran
Alvin Collins Daniel Houston Patricia McHenry Paul Trask
John Consentino William Houtz William McKeever Thomas Turk
Lawrence Cosentine Donald Howard Ilove McKenzie Sandra Underwood
Doris Coughlan Michael Hoy Barbie Medina Clyde Urban
William Craig Dorothy Hudson Gina Merighi Nicholas Uva
Anthony Curcio Daniel Hughes Thomas Meyers Ralph Violetti
Deborah Dauer Claire Hvozda Barbara Miller Margaret Walker
Wendy David Joseph Irish Isabel Mills Michael Walsh
Maryann Davis Barbara Isaacman David Minderhout Michael Wasiuta
Joseph Defino Philip Jacobsen Mercedes Moughan Marion Weiant
Joseph DeLuca Eleanora Jones Rhoda Mull Wilbur Weidman
Scott DeWire Gregory Kane Emma Muscar Cassandra Weikert
Daniel Diaz Janice Kane Susan Newswanger David Weisbach
Paul Dickert Jagmeet Kaur Diane O’Brien Michael Welch
Peter Ottaviani Brian White
Henry Packer Janet Witmer
John Passeri Gary Wriggins
Viola Paucke Melvin Yancey
Barbara Pockevich Jeanne Young
Daryl Polansky Waldron Young
Michael Politz

Advancing the Mission A 15-Year Milestone

As the Chapter enters into its fourth decade, we are working Congratulations
harder than ever to innovate and build partnerships to to Lehigh Valley
strengthen and nurture people with ALS so they can live their Health Network’s
lives to the fullest. Neuromuscular
Here are some of the ways we’re committed to intensifying and ALS Center for
our capacity to serve, advocate for, and empower people Comprehensive
impacted by ALS: Care for its 15-
year anniversary of
IDENTIFYING WAYS TO CONTINUALLY IMPROVE providing care and
SERVICES services to the ALS community.
Every Care Services program is being reviewed to ensure
it optimally meets the needs of people with ALS and their Over its 15 years of operation, the ALS Center has
caregivers. The review process is exploring how to strengthen earned designation as a Recognized Treatment
and sustain the Chapter’s full range of community-based Center by The ALS Association—a distinction that is
programs, including those that provide in-home care, medical only awarded if a center provides evidence-based,
equipment, assistive technology, ramping and stair glides, multidisciplinary ALS care and services in a supportive
and van transportation. atmosphere that emphasizes hope and quality of life.
“We are looking at all facets of our existing programs to
determine if they meet the needs of those we serve in the Together with representatives from the Greater
most effective ways possible. We are also exploring new Philadelphia Chapter, ALS Center clinicians and
programming opportunities that will expand our capacity staff, patients, and family members honored this
to make an impact on the quality of people’s lives. Patient, milestone anniversary with a special ceremony and
family, and caregiver input will be key components of the proclamations from Allentown Mayor Ray O’Connell,
exploratory process, and inform the kind of recommendations as well as Pennsylvania State Senators Pat Browne,
that are ultimately proposed by each program review Lisa Boscola, and Mario Scavello.
workgroup,” says Steve Spaulding, Director of Care Services.
Marilyn Condrack, who visits the ALS Center for care,
UNITING COMMUNITY LEADERS IN SOUTH shared her appreciation with the crowd. “Thank you
CENTRAL PA TO FIGHT ALS to the ALS support team for their years of service to
In response to the needs of the ALS community in South all patients…they show us so much compassion and
Central PA, the ALS Harrisburg/Hershey Executive Council excellent care…my children rest easier knowing the
was formed this spring to build further awareness and kind of care provided to me.”
increase fundraising capacity for ALS research and care.
“After serving this area for over two decades, and Podcasts Provide Enrichment
experiencing ALS through a personal connection, I know and Helpful Tips
how vital it is to spread awareness about Lou Gehrig’s
disease and to encourage help from within our own Since 2015, the Greater
community. I am pleased to be a partner in this initiative,” Philadelphia Chapter
says Council member and former State Senator Pat Vance. has uploaded over 100
Along with former State Senator Vance, the Council episodes of the Talk to
includes leaders in business, government, and the Defeat ALS Podcast.
community who are working closely with the Greater Recent podcasts feature
Philadelphia Chapter to increase understanding of ALS The ALS Association
throughout the extensive 11-county area that comprises Clinical Manager of
South Central PA. Assistive Technology
For more information about the the Council, contact Nichelle Alisa Brownlee who
Hill at [email protected] or 215-664-4137. shares meaningful tips for
people with ALS and their
caregivers. To listen to
these episodes and other helpful
podcasts produced by the Chapter, visit
alsphiladelphia.podbean.com or subscribe on
iTunes today.

k t o def
wa l

tion
eat Thank you to the generous sponsors

t he
a l s a s s o c i a who supported our Walks and Ride!

Local National

105.7 The HAWK Cytokinetics
92.7 WOBM Mitsubishi Tanabe Pharma America
94.3 The Point
Acme Markets Numotion
Quantum
Atlantic City Electric Permobile
BAYADA Home Health Care

Blue Cross Blue Shield
CSS Industries, Inc.
Danzeisen & Quigley
Eye to Eye

First Keystone Community Bank
First National Bank
GU Energy

Hackensack Meridian Health
Highmark

Lakewood BlueClaws
Majestic Athletic
Mobility Works
Morey’s Piers

News Radio WHLM
Performance Bicycle

Sam Adams
Seaside Heights Borough

ShopRite
SkinnyPop Popcorn
The Wawa Foundation

Total CRYO
Turkey Hill
UNICO - Atlantic City Chapter
Universal Supply
USLBM Foundation
Utz Quality Foods

Wheelies

Listing current as of time of printing.

321 Norristown Road, Suite 260
Ambler, PA 19002

SAVE THE DATE! UPCOMING EVENTS

Annual Dinner

Honoring Charlie Dent

Hershey Area
Caregivers Day
October 27

Senior Policy Advisor, DLA Piper; Former Greater Philadelphia Walk Philadelphia Area
U.S. Congressman; CNN Political to Defeat ALS® Caregivers Day
Contributor; and ALS Champion November 18
Saturday, November 3, 2018 Annual Dinner
Wednesday, November 28, 2018 Citizens Bank Park November 28
VIE, 600 North Broad Street Register today! Philadelphia Area Patient
Philadelphia, PA and Family Holiday Party
5:30 PM VIP Reception GreaterPhiladelphiaWalktoDefeatALS.org December 2
6:00 PM Cocktails & Hors d’Oeuvres Hershey Area Patient and
7:00 PM Dinner & Program Coming in Spring 2019! Family Holiday Party
Lavish hors d’oeuvres, top-shelf open TBD
bar, annual Phillies presentation, and Hope and Help Symposium
exciting live and silent auctions
Complimentary valet parking Learn about the most promising
For sponsorship and ticket breakthroughs in ALS research, as well
information: as strategies that help to manage the
alsphildelphia.org/AnnualDinner physical and emotional rigors of ALS.